A couple of days ago there was a post about the baby whose parents got her a tattoo as part of her bucket list. The tattoo was not real but many posters thought it was and it caused a bit of a controversy. But, in causing a little bit of an uproar it also brought Baby Avery to the attention of many people. I was recently made aware of spinal muscular atrophy (SMA) which is the No. 1 genetic killer of children under the age of 2 in the U.S. via the Bucket List Blog of Baby Avery. Her parents created the blog to bring awareness of SMA to the public because many people are not aware that there is a test that can be done for it. Baby Avery died on April 30th, 2012 due to complications from spinal muscular atrophy (SMA), she would have turned 5 months old on May 11th. Every woman thinking about having a child SHOULD have the test done to check for the gene that causes this disease. If both parents are a carrier there is a 1 in 4 chance that your child will be born with SMA which is ALWAYS fatal and for which there is NO CURE. For more information please check out Avery's Blog http://averycan.blogspot.com/ . Her parents are still doing what they can to bring awareness about SMA to others. Also, to ALL WOMEN: tell your Ob/GYN about Baby Avery and maybe they'll routinely start offering SMA testing. PLEASE help to spread awareness about SMA!
(I am posting this in different section with different headings for a reason. Baby Avery's story touched me and I want to do my part to help bring awareness.)
Asked by Anonymous at 2:51 PM on May. 1, 2012 in General Parenting
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