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Sjogren's Syndrome

Has anybody else been diagnosed with this? What did it mean or your life? After getting word from the doctor yesterday, I've been looking up the condition on the Internet and kind of freaking myself out.

 
Ballad

Asked by Ballad at 1:16 PM on Apr. 20, 2013 in Health

Level 45 (193,996 Credits)
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Answers (12)
  • Like all autoimmune diseases doctors think Sjogren's Syndrome may be caused by a combination of environmental and genetic factors. We don't know exactly what causes these types of conditions.

    As far as lymphoma, we are all more susceptible to certain types of diseases. If you notice any swelling on your body see a doctor right away. You have to be careful when reading things on the web because none of it is put into perspective. You don't know how much more likely people with Sjogren's Syndrome are likely to contract lymphoma. These claims aren't scientifically verified. They might be mentioned on one site and then just repeated by others without any real data to back it up.
    RyansMom001

    Answer by RyansMom001 at 2:54 PM on Apr. 20, 2013

  • I don't know much about it at all but I did find a group- http://www.cafemom.com/group/27950/?ct=search_group

    JeremysMom

    Answer by JeremysMom at 1:20 PM on Apr. 20, 2013

  • Autoimmune diseases are extremely common. Like most autoimmune diseases the symptoms and severity vary widely from individual to individual.  Don't go by what the internet tells you just be aware of the common symptoms and complications so you can act proactively if something new should come up.  Treat other symptoms you are are having now, worry about the rest if they develop. 

    RyansMom001

    Answer by RyansMom001 at 1:24 PM on Apr. 20, 2013

  • I read your post last night, I am going to ask my brother about this, I don't know very much about it, but I am sorry you got diagnosed with it :(
    jerseydiva

    Answer by jerseydiva at 1:19 PM on Apr. 20, 2013

  • I really don't know much about it. I came across it recently while doing searches about certain medications I was on. What stood out for me is the dryness issue. Could that be a reason for your migraines??
    m-avi

    Answer by m-avi at 1:21 PM on Apr. 20, 2013

  • I have sjogrens, diagnosed almost 10 years ago. My symptoms have decreased dramatically after leaving my ex and all his stress. Currently I have almost no symptoms, aside from some extreme dryness in my mouth and sometimes eyes (although sometimes I still wear contacts it's for a much shorter period of time than I used to) and occasional tingling in my fingers.
    They watched me closely during my pregnancies because they were concerned about my baby having heart defects. I ended up with some kidney damage but they aren't sure if that's related or not.
    missanc

    Answer by missanc at 3:16 PM on Apr. 20, 2013

  • Oh - nobody in my family has ever had it so I don't know about a genetic link but I will be watching my kids, especially my girls, as they age.
    missanc

    Answer by missanc at 3:22 PM on Apr. 20, 2013

  • I don't know anything about Sjögren's syndrome, but I know about the dry mouth and sinus problems. I've been dealing with them for 11 years (almost exactly 11). Biotene works really well. Chewing sugarless gum or carrying water around with you helps also. Staying hydrated actually helps me a good bit with my sinus issues, but a humidifier and nasal saline solution also help. I was also advised not to eat or drink sugary stuff and to brush my teeth after every time I eat or at the very least rinse my mouth out. Hopefully that helps some. If you have questions you can PM if you want.
    mommy_jules

    Answer by mommy_jules at 3:38 PM on Apr. 20, 2013

  • I have secondary sjogren's. I first developed Psoriatic arthritis and now secondary sjogren's. I don't treat specifically but treat my immune system overall. My main symptoms are dryness, my eyes get so dry that it hurts to cry.
    tntmom1027

    Answer by tntmom1027 at 5:46 PM on Apr. 20, 2013

  • The dryness is what led to the diagnosis. All of a sudden over the last few years I started having serious dental problems, sinus trouble, an increased incidence of migraines, digestive issues, and dryness in other places that interfered with my fun, if you know what I mean. I didn't know all that stuff was related. Plus joint pain and chronic fatigue. I was diagnosed with fibromyalgia a year or so ago, and the new rheumatologist told me that fibro and Sjogren's often go together. I can be proactive about going to the dentist every three months, use dry mouth products and a humidifier, and regulate my schedule for fatigue. I can live with that. But I can't find any information about whether this might be genetic, which I'd like to know, and then I just saw something saying people with Sjogren's can develop problems with their internal organs and are more likely to get lymphoma. That freaked me out.
    Ballad

    Comment by Ballad (original poster) at 1:41 PM on Apr. 20, 2013

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