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Anyone here diagnosed with Cystic Fibrosis as an adult?

Or has anyone has a sweat test performed only to get a false negative?

 
harris4

Asked by harris4 at 9:01 PM on Jul. 7, 2013 in Health

Level 18 (6,449 Credits)
This question is closed.
Answers (6)
  • Wow, you are busy!

    Have the drs considered doing a genetics test if the sweat test doesn't work?
    Sorry you're going through this, that sucks!
    PMSMom10

    Answer by PMSMom10 at 10:45 PM on Jul. 7, 2013

  • I haven't been diagnosed nor have I had the sweat test.
    However, we have a customer, in her late 40's recently diagnosed with CF. She goes to her Dr 4 times a month, just to stay on top of her lungs.
    All along she thought she had allergies.

    harris, are you okay? I haven't seen you around for awhile.
    PMSMom10

    Answer by PMSMom10 at 9:52 PM on Jul. 7, 2013

  • Yes, i'm fine thanks for asking. Started back to school!! With school, work, and single mom to 3 special needs children.....well I have been bbbuuuusssyyy!
    I have had this crud for 2 years and doctors have ruled out allergies, asthma, and other things. I cough up this thick salty green stuff and because of past stomach problems....and they finally decided to do a sweat test. It was negative but dr believes it was false negative. See lady at lab didn't think she collected enough sweat so she kept resetting timer and eventually just took it and tested it anyway. So I was told if not enough sweat was collected it would still read but just give a false negative.
    harris4

    Comment by harris4 (original poster) at 10:32 PM on Jul. 7, 2013

  • Not sure about genetic test. Guess I'll find out more at appt tomorrow. I've just never heard of false negatives or even cystic fibrosis for that matter.
    harris4

    Comment by harris4 (original poster) at 11:01 PM on Jul. 7, 2013

  • Positive thoughts tomorrow harris. Hang in there!
    PMSMom10

    Answer by PMSMom10 at 11:21 PM on Jul. 7, 2013

  • Thanks!
    harris4

    Comment by harris4 (original poster) at 11:30 PM on Jul. 7, 2013

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