My 6 year Old has Nephrotic Sydrome Its basically he Needs New Kidneys. Hes Been going to childrens Memeorial For about 3 years now. but hes getting close to getting Dailysis. & I met the Center and people there. I Don't like it My mother Don't like it. But there is No other Pediatric Dailysis Center that I Can Find. I Don't Know what to Do Or Who to go to with a Second opion I Cant even Find a Group ANYWHERE to talk to Other moms...... Just Lost :(Answer Question
I'm so sorry. I have a friend that needed to go on dialysis. Things weren't looking good for her and dr gave her 6 months to live. Then she got the best call of her life and soon after got a new kidney.
Have you tried looking up Children's Hospitals or St. Jude's to see if they would have information.
Here's a bump and prayers for you and your son.
Answer by tempsingl3mom at 9:48 PM on Jul. 22, 2013
Answer by Mrs_Prissy at 9:49 PM on Jul. 22, 2013
I Cant even Find a Group ANYWHERE to talk to Other moms
Answer by feralxat at 9:50 PM on Jul. 22, 2013
Answer by tempsingl3mom at 9:55 PM on Jul. 22, 2013
Answer by Mrs_Prissy at 9:56 PM on Jul. 22, 2013
would any of these sites offer assistance?
Your child cannot be the only child in your area suffering from the condition. Please talk to the Patient Advocate and or Social Services at the hospital your child is being treated at.
Or- you can tell us city and state and we will google for you
we like searching out info :)
Answer by feralxat at 9:59 PM on Jul. 22, 2013
Answer by Ballad at 10:19 PM on Jul. 22, 2013
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