Sandifer's isn't studied very well, trust us our family has been on a search for answers for a year now. The posturing can be like torticollis, which our son had before six months but after six months of age it started to look like seizures and he actualy curls over instead of back. After many neurologist and gasteroenterologists we are back at the diagnosis of sandifer's caused by a severe motility disorder. Our son has no signs of gerd other than an irritated esophagus which he takes prevacid for. This illness is very rare and so far every child I've heard of with it has varrying degrees of it with different characteristics which makes it hard to spot or differ from other diseases.
at 11:23 AM on Feb. 21, 2009