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Rare Birth Defects....

Good morning! My youngest son had a very rare birth defect called Pulmonary ArterioVenous Malformations. We did not know, LONG story, but after almost loosing him at Cook's Childrens Hospital, the AWESOME team of doctors figured out what it was, after a cariocath surgery also, which resulted in him having 5/8th of his lower lung removed.

My question is this, I wanted to start a support group / awareness to this disease, which is usually only found in autopsy.........has any other Mom went through this with your child?

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blessed5x

Asked by blessed5x at 11:24 AM on Mar. 26, 2009 in General Parenting

Level 2 (4 Credits)
Answers (1)
  • I'm sorry...I can't say that I have. I'm sure glad that doctors figured out how to take care of your son. What a blessing...
    ProudTexan71

    Answer by ProudTexan71 at 4:59 PM on Mar. 26, 2009

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