Good morning! My youngest son had a very rare birth defect called Pulmonary ArterioVenous Malformations. We did not know, LONG story, but after almost loosing him at Cook's Childrens Hospital, the AWESOME team of doctors figured out what it was, after a cariocath surgery also, which resulted in him having 5/8th of his lower lung removed.
My question is this, I wanted to start a support group / awareness to this disease, which is usually only found in autopsy.........has any other Mom went through this with your child?
Answer by ProudTexan71 at 4:59 PM on Mar. 26, 2009