hello, my name is ashley. i'm a mom to two boys sky whos two, and kyvn who's nine months. kyvn has a really rare condition he docs can't really tell me much about. he has micro deletion of his 3rd and 10th cromosome. he's missing his corpus collosum. has PVL, and CP. he's developing slowly but surely with really low mucel tone, but a lot of fat! his brain isn't fully developed, it's smooth. and his lungs are very under developed. with a low immue system. the docs said he's the second one in medical history to have these cromosome missing. i was just wondering if anyone else out there has a child similier to his condition? or maybe missing there corpus collosum?
it would be nice to find some parents going through this as well, thanks!!
Answer by TMJ121099 at 7:39 PM on Mar. 26, 2009
Answer by Anonymous at 7:41 PM on Mar. 26, 2009
Answer by mrs.sarafin at 6:32 PM on Feb. 10, 2010
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