Hi - I'm very curious to know how your husbands vision is? Did he ever let the coloboma stop him from participating in sports, activities? driving? Depending on where the coloboma is in the eye there are different visual impairment.
My baby boy has Bilateral Coloboma as well, his is from the iris (when you look at his eyes you see the coloboma in his pupil) all the way back to his retina. I know that each person is different, but it is such a rare condition the chances of coming across someone is slim. Carter's vision at this time is very good, much better than we originally we told, as far as we can tell only to upper field of vision is missing, and he can see out of both eyes with no glasses needed.
at 1:55 PM on Dec. 12, 2009