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has anyone heard of alpers disease or syndrome?

My 21 year old niece just got the diagnosis about her 8 month old son. Hes had problems since birth and they just discovered this. Everything Ive read online says they dont live past a decade. The support sites I went to most of their children died at 1 year. How can I help my niece through this Im a thousand miles away. I dont know if she can handle this. Please, any advice out there?

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DIANE463

Asked by DIANE463 at 2:13 PM on May. 4, 2009 in Health

Level 2 (10 Credits)
Answers (1)
  • no, I have never heard of it. sorry to hear about your niece.
    chefjen

    Answer by chefjen at 2:20 PM on May. 4, 2009

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