not personally, but my co-worker had that as an infant. Her two kids have been fine, but she was in a cast after she was born.
at 12:25 PM on Aug. 26, 2009
My best friend had that as a child. She wasn't in a full body casy, but had a cast from her butt to her feet with a bar between the legs for a LONG time... then braces built the same way for years. She was in about 1st grade when she was diagnosed.
The whole cast part wasn't fun... but once she got the braces & got comfortable with them... there was no stopping us! LOL We figured out ways to still ride my go-kart, ride our bikes, etc.