I've seen that particular phrase a lot on CM and was wondering.Answer Question
Answer by Anonymous at 12:25 PM on Oct. 14, 2009
There are no autistic members in any controlling position of Autism Speaks, only parents and other related family members. So I have several autistic friends who say why not let autistics speak for themselves like with the Autistic Self-Advocacy Network instead of having others speak for them. As you can imagine, the divide between "Being Autistic" and "Putting Up with someone else's Autism" is a BIG difference, given how social slights and other communication issues are part and parcel of Autistic behavior, even though it doesn't have to be. As a result, with such lopsided representation, Autism Speaks can hardly presume to speak "for" Autism in any sense. Many autistic people find the group offensive.
Answer by Anonymous at 5:07 PM on Oct. 14, 2009
Answer by southernlamom at 10:59 PM on Oct. 16, 2009
Personally its not my fave one. I prefer www.generationrescue.com
Why Generation Rescue shouldn’t be on the IACC : The culture of Generation Rescue is not one of working as a team with others. You either agree with their position, or people shout “BullShit” loudly at you.
Answer by Anonymous at 12:25 AM on Oct. 17, 2009
Answer by southernlamom at 12:43 PM on Oct. 17, 2009
No one is saying that there's no connection between what we put in our bodies and our physicial development. What science is saying is that there is no link between vaccines and autism. Autism is not a misdiagnosis for mercury poisoning (which is what GR was trying to claim when my friend's child was first diagnosised). Addditionally, it's quite possible for a child with autism to have other problems like Celiac Disease. But that doesn't mean treating the other problems will "cure" their autism. Treating it may help them better handle therapies for autism - which is a good thing! But touting a GF diet as a cure for autism is wrong. I am a strong supporter of the autism community, I just don't think Autism Speaks and Generation Rescue necessarily are - I don't agree that their agendas. People can make up their own minds about them though.
Answer by Anonymous at 1:58 PM on Oct. 17, 2009
Answer by southernlamom at 4:57 PM on Oct. 17, 2009
Answer by Anonymous at 8:18 PM on Oct. 17, 2009
Answer by Anonymous at 8:25 PM on Oct. 17, 2009
Answer by southernlamom at 9:27 PM on Oct. 17, 2009