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Does anybody has a special needs child?

My daughter has Monosomy 21, and I would really like to meet other mom's out there who are in the same situation that I have:)

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mother4ever0426

Asked by mother4ever0426 at 9:33 AM on Nov. 7, 2009 in General Parenting

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Answers (7)
  • Acording to the internet there have only been 6 cases of babies born alive with monosomy 21, ever!

    There is a website for people with rare diseases called NORD. They have discussion boards and you can get emails every day. My three children, grandson and I hare a rare genetic disorder and I used to be part of NORD discussion boards. It started turning into mainly 'normal' people giving their symptoms and expecting others to diagnose them with a rare disease. I got bored with it. It may meet your needs.
    Gailll

    Answer by Gailll at 9:44 AM on Nov. 7, 2009

  • my kid specifically has monosomy 21 with ring chromosome 21 which is why her case is quite unique compared to the other monosmy 21 cases.
    mother4ever0426

    Answer by mother4ever0426 at 10:00 AM on Nov. 7, 2009

  • I have a special needs son, but not medical.
    NightPhoenix

    Answer by NightPhoenix at 10:36 AM on Nov. 7, 2009

  • I have 2 special needs kids one is menatally slow she is a yers and a half behine her age mentally and my son is visually impared can only see 10 ft and also has mild cebreal palsy
    mom2ryneandsam

    Answer by mom2ryneandsam at 12:41 PM on Nov. 7, 2009

  • hi mom2ryneandsam, tnx for the comment..if you don't mind me asking do your kids have therapy now?mine does, she has PT and OT every week.
    mother4ever0426

    Answer by mother4ever0426 at 10:15 PM on Nov. 7, 2009

  • I have a son with special needs. He is undiagnosed, but strongly suspected of having some type of mitochondrial disorder.
    Anonymous

    Answer by Anonymous at 10:43 PM on Nov. 7, 2009

  • My younger brother has Downs Syndrome, he is 7 years younger than me. If you wanna talk with me I would be more than happy, I can always ask my mom if you had questions I couldnt answer!
    shannonre

    Answer by shannonre at 11:38 PM on Nov. 7, 2009

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