Answers > General Parenting

Does anybody has a special needs child?

My daughter has Monosomy 21, and I would really like to meet other mom's out there who are in the same situation that I have:)

mothe... Asked at 9:33 AM on Nov. 7, 2009 by:
  • Answered at 9:44 AM on Nov. 7, 2009 by:
    Gaill...
    Acording to the internet there have only been 6 cases of babies born alive with monosomy 21, ever!

    There is a website for people with rare diseases called NORD. They have discussion boards and you can get emails every day. My three children, grandson and I hare a rare genetic disorder and I used to be part of NORD discussion boards. It started turning into mainly 'normal' people giving their symptoms and expecting others to diagnose them with a rare disease. I got bored with it. It may meet your needs.
  • Answered at 10:00 AM on Nov. 7, 2009 by:
    mothe...
    my kid specifically has monosomy 21 with ring chromosome 21 which is why her case is quite unique compared to the other monosmy 21 cases.
  • Answered at 10:36 AM on Nov. 7, 2009 by:
    Night...
    I have a special needs son, but not medical.
  • Answered at 12:41 PM on Nov. 7, 2009 by:
    mom2r...
    I have 2 special needs kids one is menatally slow she is a yers and a half behine her age mentally and my son is visually impared can only see 10 ft and also has mild cebreal palsy
  • Answered at 10:15 PM on Nov. 7, 2009 by:
    mothe...
    hi mom2ryneandsam, tnx for the comment..if you don't mind me asking do your kids have therapy now?mine does, she has PT and OT every week.
  • Answered at 10:43 PM on Nov. 7, 2009 by: Anonymous
    Anonymous
    I have a son with special needs. He is undiagnosed, but strongly suspected of having some type of mitochondrial disorder.
  • Answered at 11:38 PM on Nov. 7, 2009 by:
    shann...
    My younger brother has Downs Syndrome, he is 7 years younger than me. If you wanna talk with me I would be more than happy, I can always ask my mom if you had questions I couldnt answer!

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