I am so very sorry, BIG hugs to you & your little one.
CDD (also called Heller's Syndrome) falls under the umbrella of the Pervasive Developmental Disorders and is VERY rare. Loss of skills is typically dramatic, occurring very quickly & almost all at once. A child with CDD will have a greater chance of developing epilepsy and of being MR. There is no specific treatment for CDD, but medications & therapy can be used to manage a child's behaviors. The thing that really sucks about CDD is that the loss of skills tends to be severe and permanently disabling, and most children will eventually end up institutionalized.
However, CDD is rare & there is something called late-onset infantile autism that looks very much like CDD & has a much better prognosis. The primary difference b/t the two is that the loss of skills in autism tends to be gradual, whereas in CDD it tends to happen all at once in everything.
at 7:02 PM on Feb. 27, 2010