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Anyone else on cafe mom have a child with tay-sachs disease?

 
CassieJordan786

Asked by CassieJordan786 at 7:02 PM on May. 24, 2010 in Kids' Health

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Answers (3)
  • Hi Cassie,
    My name is Kim Kubilus, I'm the director of family services for National Tay-Sachs & Allied Diseases Association (NTSAD). I am very sorry your daughter Stacey has Tay-Sachs. I can connect you with lots of other families, help you understand symptom management options and current research efforts. Please email me at Kim@ntsad.org or call 800-906-8723. I and the entire NTSAD family is here to help. You are not alone!!

    Hope Stacey is having a lovely day!!

    Hugs and prayers,
    Kim
    KimTay-Sachs

    Answer by KimTay-Sachs at 10:29 AM on May. 25, 2010

  • Not me, sorry, but you might find the information you need at one of the following websites:


    http://www.benotafraid.net/


    http://www.prenatalpartnersforlife.org/


     

    flatlanderjenn

    Answer by flatlanderjenn at 9:01 PM on May. 24, 2010

  • Check one of the CafeMom Jewish Moms groups
    rkoloms

    Answer by rkoloms at 4:40 PM on May. 25, 2010

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