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Hi! Anyone here with a child who has fragile x?

Wondering what to anticipate, testing and treatments. What is your experience regarding this?

 
LavenderRose10

Asked by LavenderRose10 at 5:04 AM on Jun. 21, 2010 in General Parenting

Level 12 (762 Credits)
This question is closed.
Answers (4)
  • Trusted resources below:

    websites:
    Your Genes Your Health - www.ygyh.org - fragile X page

    FRAXA Research Foundation - www.fraxa.org
    The National Fragile X Foundation - www.fragilex.org

    Suggested videos:
    First Down Towards a Cure - www.youtube.com/watch?v=BgcQi0bbaJQ

    Fragile X: Hitting the mark - www.youtube.com/watch?v=-6-J_YcVRi4

    In print, layman terms
    Time Article – Fragile X: Unraveling Autism's Secrets
    http://www.time.com/time/magazine/article/0,9171,1818268,00.html

    Time Article – A new approach to correcting autism
    http://www.time.com/time/health/article/0,8599,1696451,00.html

    Future Research: Fragile X locks minds, will this pill be a key?
    http://www.ajc.com/news/fragile-x-locks-minds-332289.html


    FXTAS links –
    http://www.fragilex.org/html/fxtas.htm
    Raise the bar on FXTAS: Recognize it
    Sally_Nada

    Answer by Sally_Nada at 4:51 PM on Jun. 21, 2010

  • rkoloms

    Answer by rkoloms at 6:06 AM on Jun. 21, 2010

  • I do :). Sallys info is the best. Go with that. But as a parent of 2 fraggles I totally couldn't imagine life without them. They are so much fun and enjoyment. If you have more specific question about any of this please email Sally or I individually and we can def help you out :)
    Walker101

    Answer by Walker101 at 2:59 PM on Jun. 24, 2010

  • whatn is that In just learnesd of chosome 10 being missing in my twins and pallos that can lead to colon cancer so any help u could give me would be great
    butterflysmom

    Answer by butterflysmom at 3:36 PM on Jun. 30, 2010