I don't know how to talk to people except for maybe one friend who knows my child has muscular dystrophy with related health problems. He is doing relatively well, seems to have a good grasp of what is happening to him. My feelings are tough, I don't know what to do with my fears of him dying or becomeing less independent. Am I doing too little, am I doing too much? If no cure is found, his life will be shortened, but we don't know how much. He tires very easily for a teenager, and his growth is causing stress on his joints. His heart is doing okay, enlarged but okay. Financially its hard too, many of his medical bills are covered by the MDA, but a lot of time we are living pay check to pay check and I want to be able to do so much for/with him. We do a lot of fun stuff, cheap, meaningful things with the family. What are good ways to cope?
Asked by Anonymous at 12:35 AM on Jul. 23, 2010 in Health
Answer by txdaniella at 12:44 AM on Jul. 23, 2010
Answer by truthteller0722 at 12:37 AM on Jul. 23, 2010
Answer by txdaniella at 12:46 AM on Jul. 23, 2010
Answer by sportemom at 12:52 AM on Jul. 23, 2010