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I have been trying to get my son approved for SSI for almost a year now. Of course they denied him the first time, ( I heard that is normal), but the appeals could take as long as 15 months from the day I filed. We were also told that we make to much money. My husband has a good job with good insurance but they don't cover everything and we also have 2 other children that depend his income. Because of the medical bills I had to go back to work recently to help out and now they are going to just laugh at us even though he was just diagnosed with Cerebral Palsy. Has anyone else had this struggle and if so what did you do?


Asked by Jessica9183 at 10:09 AM on Oct. 7, 2008 in Money & Work

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Answers (5)
  • Here are some other places you can try for some help:

    I know it doesn't help with getting the SSI. It is very unfortunate that the governement doesn't see the total expenses involved with raising a special needs child.  I will pray for you and your family.



    Answer by tinkerbell76 at 12:02 PM on Oct. 7, 2008

  • Do you have a lawyer? I know they can get expensive also, but they can get things done much quicker. Also isn't Cerebral Palsy usually caused by a mistake at birth. If something went wrong during the birth, it's time to look at the Hospital, Doctors and Nurses and get a good lawyer on your side.

    Answer by at 10:53 AM on Oct. 7, 2008

  • No we can't afford the retainer fee to get a lawyer. Some CP is caused by complications at birth. However his was not. They are not sure what has caused it we are in the process of finding this out. They think he had a stoke when I was carrying him.

    Answer by Jessica9183 at 11:34 AM on Oct. 7, 2008

  • Social Security programs do not care how much you have to dish out for the extra expense for a special needs child.  According to SS website:

    "Your child under age 18 can qualify if he or she meets Social Security’s definition of disability for children, and if his or her income and resources fall within the eligibility limits. The amount of the SSI payment is different from one state to another because some states add to the SSI payment."

    "If your child’s income and resources, or the income and resources of family members living in the child’s household, are more than the amount allowed, we will deny the child’s application for SSI payments. "


    Answer by tinkerbell76 at 11:48 AM on Oct. 7, 2008

  • In Utah most people are automatically denied 2-3 times that I have been aware of before being approved. My suggestion would be to hire an attorney - many will take a small % of your back payment for payment - if you aren't approved they don't get paid.

    In my experience it takes 2-5 years to be approved at times for SSI but you need to remember that this is also a need based program. My son was on SSI, and in Utah as soon as my income hit $35K a year his SSI was closed and now I owe them money. Check into your state to see if a Disabled Medical program is an available option. In Utah I applied for DM (disabled medicaid), it took me 6 months to get him through the medical review board and have his DM approved.

    Answer by tbrooks at 12:08 PM on Oct. 7, 2008