I am sorry that you are dealing with this. I have a friend whose child has this. We becamse friends because one of the symptoms of Noonan is Congenital Heart Defects and my Daughter also has a CHD. We talk a lot and share stories. I would be glad to talk to you anytime. I am going to bump your question so that more people will see it and I pray that you get some more answers.
at 7:46 PM on Aug. 30, 2010