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Does any one have a child who has been diagnosed with The Waardenburgs Syndrome??Or know anything about it?

My daughter was born with patches of Depigmented hair on her head? =(
It will never have color the call it Piebaldism.......Which Piepaldism is one of the warning signs for The Sydrome...She gets tested Dec 16....just worried

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Sweetstang1

Asked by Sweetstang1 at 4:23 AM on Oct. 20, 2008 in Kids' Health

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Answers (3)
  • I haven't heard of it but I did find this:

    Info:
    http://ghr.nlm.nih.gov/condition=waardenburgsyndrome

    Support group:
    http://www.mdjunction.com/waardenburg-syndrome
    kaycee14

    Answer by kaycee14 at 3:25 PM on Oct. 20, 2008

  • I am slightly familar with it. My kids have albinism and Waardenburgs is listed because it is partial albinism. Yahoo has 2 groups for people with Waardenburgs that maybe helpful to you.

    http://groups.yahoo.com/search?query=waardenburg
    Roxanne0607

    Answer by Roxanne0607 at 4:27 PM on Oct. 20, 2008

  • My husband, 2 of our daughters, both his sisters, his dad, and his Grandma. All have Waardenburg's Syndrome. How did the testing go...did you get any answers?
    Sallee4

    Answer by Sallee4 at 8:35 AM on Dec. 14, 2009

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