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4 Bumps

Does anyone know a group for Fragile X parents and kids in GA?

My nephew was diagnosed with Fragile X Syndrome. He is turning 3 months in 3 days, and I am trying to help his parents deal with it and see the light at the end of the tunnel. Looking for a support group in Marietta, Woodstock or Canton area. Roswell or even Atlanta will work too. Needs to be something positive. Thank you in advance.

Answer Question
 
Anuta816

Asked by Anuta816 at 10:58 PM on Oct. 18, 2010 in Kids' Health

Level 2 (3 Credits)
Answers (7)
  • I'm in Alpharetta (near all those areas) but don't have a baby w/the condition. I do have a 4 month old though so if they would like support in that aspect, you can PM me.
    keisha613

    Answer by keisha613 at 11:01 PM on Oct. 18, 2010

  • Thank you for your great offer. I will pass it on to her.
    Anuta816

    Comment by Anuta816 (original poster) at 11:05 PM on Oct. 18, 2010

  • gl
    mekarevell

    Answer by mekarevell at 1:54 PM on Oct. 19, 2010

  • Try this site it may give you info on what you need.


    http://www.atlantaparent.com/justkids/justkids_resource/resource-guide.html#mental


      I work in Ellijay just north of all the places you listed.


    Good luck and God bless.

    luvmygrlz

    Answer by luvmygrlz at 2:03 PM on Oct. 19, 2010

  • no here's a bump
    sarasmommy777

    Answer by sarasmommy777 at 7:01 PM on Oct. 19, 2010

  • How do you get tested for fragile x? I believe my 3 oldest have it.
    Ibelongtojesus

    Answer by Ibelongtojesus at 9:07 AM on Oct. 21, 2010

  • To connect with other parents in possibly your or near your location I recommend joining the Fragile X Listserv sponsored by FRAXA Research Foundation hosted by Emory University in GA.

    Details to join are available at: http://www.fraxa.org/getInvolved_listserv.aspx

    Testing - Must be the DNA Test (FMR1 DNA test aka Southern Blot w/PCR Analysis) or determine if they can use the new test developed by Quest Diagnositic, which only requires a drop of blood.

    Emory also has a research study on POF in which women can be screened through participation to determine if they are carriers, if you connect with me I can provide contact details on the study.

    Good luck and hugs! Sally
    Sally_Nada

    Answer by Sally_Nada at 2:00 PM on Oct. 25, 2010

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