I was told by three different doctors how rare it is for our child to pass away from this and in most cases the children live but have disabilities due to the bands constricting body parts. Our son Ethan is the 101 case nown in the USA. This all just sucks, my heart is shattered and I worry that our boy is in pain even with the doc's telling me he is not because he formed this way from days of conception.Answer Question
Answer by Kword at 5:17 PM on Nov. 3, 2010
Answer by Scuba at 5:26 PM on Nov. 3, 2010
My daughter was born with a disability due to ABS. I have heard of some losses in the community but I hear of many many more beautiful children being born with ABS and having a wonderful perfect life. My daughter was born without fingers on her left hand and has a smaller palm and wrist due to ABS.
There was no pain it just stopped the formation of the fingers, hand and wrist. My daughter is now 9 years old and plays the guitar, water skies, plays hand bells, rides a bike and to be honest does anything a normal child does but she does it with one hand.
I know your feelings. I know how scary it can be and that is why we have created a site called Little Hand Big Heart. We want to make everyone aware of ABS one little hand at a time. The more people we make aware of this the less scary it is going to be for the parents.
Please contact me if you have any questions or just want to talk.
Answer by LHBHMom at 11:46 AM on Nov. 4, 2010
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