I applied to be a nanny for a little girl that has this syndrome it is very rare only 300 documented cases. If any of you have a child with this syndrome I just want to know what activities you have found to work best for acheieving milestones. As her nanny her parents expect me to help her reach milestones since I will be her primary caregiver. Please help, but I understand its a rare thing so don't feel bad if you have never heard of it.Answer Question
Answer by FreeSpriT4eva at 1:14 AM on Nov. 25, 2010
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