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4 Bumps

does anyone have a pre teen who was born without parts of their brain. mine has a cyst and an lp shunt, bipolar, adhd.

he's looking for friends in the brckton area with moms who can uderstand the challenges

Answer Question

Asked by oceanmama81 at 8:03 AM on Dec. 6, 2010 in Kids' Health

Level 2 (6 Credits)
Answers (6)
  • I'm sorry, we're not in your area, but here's a bump, good luck!

    Answer by Scuba at 11:00 AM on Dec. 6, 2010

  • Is there a name for the condition? Not sure it's the same thing but my own daughter (10) was a preemie and cysts on her brain were discovered while she was still in the NICU; she was later diagnosed with PVL (periventricular leukomalacia), often times a precursor to cerebral palsy, though she developed normally and suffered no long term effects; the young brain is dynamic and hers was able to compensate. There is is a PVL group here on CafeMom but not sure this is your issue; perhaps there is another group of moms here than can help. Good luck.

    Answer by FootballMom85 at 11:25 AM on Dec. 6, 2010

  • No, but best of luck. Are there any support groups in your area? That'd be a good place to look.

    Answer by PhilsBabyMama at 11:54 PM on Dec. 6, 2010

  • I hope you can find some support near you.

    Answer by KTMOM at 7:46 PM on Dec. 10, 2010

  • try googling the condition name and your area. good luck!!

    Answer by Ashlynnsmommy07 at 1:44 AM on Dec. 14, 2010

  • Best of luck to you.

    Answer by wellnessgirl at 1:36 PM on Dec. 16, 2010

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