my daughters has this rare thing called anal stenosis.. its from birth.. and hers was missed at birth.. at all her check ups, at all her doc visits i took her to for constipation.. FINALLY was caught when she was in the surgical room for being diagnosed with THE WRONG THING.. she was 2 1/2 when they found what it was.. by then her colon was severely stretched out, and she had horrible potty problems.. ugh makes me sick to realize how many doctors missed this..
Shes on meds, & for months i had to dialate her MYSELF everyday, multiple times a day, to stretch her little bottom out.. worst time of BOTH of our lives..
she had surgeries to fix it.. and now she will be 5 in a few months.. still on medicine..
she has it all over again.. scar tissue grew back.. we found THIS out because she swallowed a penny and it got stuck in her rectum so they went to get it, and realized she needed yet another surgery, AGAIN to fix her stenosis.. AGAIN.
so we FINALLY got in w/ the BEST surgeons from what I hear.. the have a center for this.. but here is my issue...
this new surgeon is NOT meeting w/ me first.. he has all her records, info, EVERYTHING, pictures, labs, doc notes, biopsy results.. but our first meeting is scheduled in a month.. and its for my daughter to be put under anesthesia to be examined and biopsied.. am i missing something? she was just biopsied AGAIN a few months ago.. its always the same thing.. and from her last procedure they have pictures of her rectum... i have said multiple times i am not comfortable w/ her just always going under anesthesia.. why cant this surgeon look at her pictures and go from there?? or does he really need to see for himself?? I have already been told she will need another surgery to fix the scar tissue.. so why is he even needing to look before they do that?? i dont understand.. and i do not want to cancel my apt...
Answer by _Tam_ at 8:12 PM on Dec. 11, 2010
Answer by itsmesteph11 at 8:16 PM on Dec. 11, 2010
Answer by lambdarose at 8:19 PM on Dec. 11, 2010
Answer by bcauseimthemom at 8:22 PM on Dec. 11, 2010
Answer by MELRN at 8:26 PM on Dec. 11, 2010
Answer by midnightmoma at 8:29 PM on Dec. 11, 2010
Answer by MELRN at 8:59 PM on Dec. 11, 2010