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Does anyone have a child with heart issues?

my son had open heart surgery at 5 days old for a coarctation of the aorta. I am just looking for anyone that maybe has been through the same things.

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Asked by Anonymous at 1:34 PM on Jan. 13, 2011 in Kids' Health

Answers (5)
  • I haven't personally but I have a nephew with heterotaxy syndrome. My sister is part of my heart mom support groups most on FB.

    You can seach Smile4riley on FB or you can go to his web site to read more about him.

    Riley is waiting for a heart/double lung transplant he is 2 years old. 



    Answer by christinato at 1:39 PM on Jan. 13, 2011

  • There are heart mom groups on Cafe mom as well.

    Answer by christinato at 1:39 PM on Jan. 13, 2011

  • well you came to the right place, I have an 11 year old daughter who just had a valve replaced, an artery opened up and a new pacemaker (3rd one) on dec 29th. Doing very well. She had open heart surgery at 6months for 4 holes in the heart and a pacemaker placed a month later. Long journey.

    Answer by laur1963 at 1:42 PM on Jan. 13, 2011

  • My youngest has a bicuspid aortic valve.


    Answer by gabenmikeysmom at 2:32 PM on Jan. 13, 2011

  • Thanks for all of your any of you know if this is bound to happen in a second pregnancy?
    I am terrified of getting pregnant again and going through the same thing...

    Comment by Anonymous (original poster) at 4:21 PM on Jan. 13, 2011

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