I am sorry none of my children have this although my youngest child was sick this past summer and we weren't sure if she was going to make it or not. She did well for 16 weeks and then got sick again. She is doing well again right now, although we don't know when she will get sick again. She has seizures and then gets sicker and sicker until she doesn't even know who we are. It comes on very quickly and they don't know why.
I wish I could help more although if you need to vent please feel free to send me a message.
at 3:03 PM on Jan. 18, 2011