Yes, my daughter was born 3 months premature and was diagnosed w/PVL while still in the NICU. Doctors could not tell us specifically what it meant her and her outcome but did emphasize that the young brain is very dynamic and can often compensate. She's been monitored very closely from birth (now 10 years old and perfectly normal in every which way), did physical therapy for a number of years and wore orthotics because of some tightening in her legs. She has been seen by a number of specialists - more preemptive than anything because any issues would have needed to be addressed sooner rather than later. There is a PVL group on here (check out my profile for the link) but it is one of the less active groups (it's pretty small) I'm involved in; let me know if I can answer any questions for you.
at 10:22 AM on Jan. 25, 2011