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Any moms out their with children with rare diseases??

My little sister has been diagnosed with job syndrome she has had it since birth she is 13 years old she was diagnosed when she was about 10 and there not for certain thats what it is. My mom is at her wits end she cant get any doctors to help they turn her away and just say idk. Is there anyone else out there that have kids with rare diseases?? What all have you gone through with doctors and finding cures??

Answer Question
 
his88angel

Asked by his88angel at 4:51 PM on Jan. 26, 2011 in Health

Level 13 (1,209 Credits)
Answers (1)
  • My older daughter has Raynaud's which is pretty rare. The doctors were not able to diagnose her until we figured it out ourselves.

    scout_mom

    Answer by scout_mom at 5:40 PM on Jan. 26, 2011

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