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Has Anyone Heard of Blount's Disease?

Hello! My name is Kira and I have 3 wonderful kids... My youngest was just diagnosed with an extremely rare bone disease. It is called 'Blount's Disease'... and it's also known as 'Tibia Vera'. I am trying so hard to network with other people going through this same thing but am having no luck!! I have started a blog to document our journey; and also set up a medical fund to help others in the future. If you or anyone you know has BLOUNT'S DISEASE; please contact me! Also, please check out my website for more information!! THANK YOU SO MUCH!!

http://benhasblounts.blogspot.com/

 
KiraHudson

Asked by KiraHudson at 2:17 AM on Feb. 4, 2011 in Preschoolers (3-4)

Level 6 (111 Credits)
This question is closed.
Answers (1)
  • I am sorry to hear that. I googled support groups and found these and others. Your family will be in my prayers.

    organizedwisdom.com/Blount's_Disease
    www.experienceproject.com/groups/Have-Blount-Disease
    jen2774161

    Answer by jen2774161 at 12:27 AM on Feb. 5, 2011

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