it is a disease that when it stars out at birth it is in the bones and causes holes in the bones then later in life, it goes to the organs 9spleen kidneys liver etc, and causes these hemangiomas (blood cysts) to form and they can bust and cause internal bleeding. In some cases there is random fluid that builds up around the lungs and they don't know why because the patients rarely live to adult age and when they do the doctors that treat the children that have this dont follow through on the research.
at 4:11 PM on Mar. 27, 2011
1-3 of 3 answers
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