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5 Bumps

Where are the parents?

They are on the phone to doctors and hospitals and fighting with insurance companies, wading through the red tape in order that their child's medical needs can be properly addressed. They are buried under a mountain of paperwork and medical bills, trying to make sense of a system that seems designed to confuse and intimidate all but the very savvy.


Where are the parents?
They are at home, diapering their 15 year old son, or trying to lift their 100 lb. daughter onto the toilet. They are spending an hour at each meal to feed a child who cannot chew, or laboriously and carefully feeding their child through a g-tube. They are administering medications, changing catheters and switching oxygen tanks.


Where are the parents?
They are sitting, blearly eyed and exhausted, in hospital emergency rooms, waiting for tests results to come back and wondering: is this the time when my child doesn't pull through? They are sitting patiently, in hospital rooms as their child recovers from yet another surgery to lengthen hamstrings or straighten backs or repair a faulty internal organ. They are waiting in long lines in county clinics because no insurance company will touch their child.


Where are the parents?
They are sleeping in shifts because their child won't sleep more than 2 or 3 hours a night, and must constantly be watched, lest he do himself, or another member of the family, harm. They are sitting at home with their child because family and friends are either too intimidated or too unwilling to help with child care and the state agencies that are designed to help are suffering cut backs of their own.


Where are the parents?
They are trying to spend time with their non-disabled children, as they try to make up for the extra time and effort that is critical to keeping their disabled child alive. They are struggling to keep a marriage together, because adversity does not always bring you closer. They are working 2 and sometimes 3 jobs in order to keep up with the extra expenses. And sometimes they are a single parent struggling to do it all by themselves.


Where are the parents?
They are trying to survive in a society that pays lip service to helping those in need, as long as it doesn't cost them anything. They are trying to patch their broken dreams together so that they might have some sort of normal life for their children and their families. They are busy, trying to survive.

Written by Sue Stuyvesant

 
harris4

Asked by harris4 at 5:40 PM on May. 15, 2011 in Just for Fun

Level 18 (6,449 Credits)
This question is closed.
Answers (8)
  • Its very true for these families.
    Mel30248

    Answer by Mel30248 at 5:46 PM on May. 15, 2011

  • This one is great also!
    harris4

    Comment by harris4 (original poster) at 5:40 PM on May. 15, 2011

  • clapping

    butterflyblue19

    Answer by butterflyblue19 at 5:43 PM on May. 15, 2011

  • I love this
    sierra_617

    Answer by sierra_617 at 5:48 PM on May. 15, 2011

  • Yes it is! I can relate to almost every line in this! It sounds bad ....but i do find comfort in knowing other people feel as hopeless as i do at times!
    harris4

    Comment by harris4 (original poster) at 5:48 PM on May. 15, 2011

  • Your tugging at my heartstrings here, I need to make cookies or something, lol
    Kathy675

    Answer by Kathy675 at 6:13 PM on May. 15, 2011

  • I had a tear come out of my eye.
    SMITxsM2

    Answer by SMITxsM2 at 6:45 PM on May. 15, 2011

  • I like this one- thank you!
    lovingmy4babies

    Answer by lovingmy4babies at 6:55 PM on May. 15, 2011