A little over 2 years ago, I became very sick for several months- my symptoms were flu like, but without a fever, I even took a couple of pregnancy tests (I had a tubal 4 years ago)... Last year I was diagnosed with fibromyalgia, treated with horrid meds than made things worse, and sent on my way.
Months later, the PA made the correlation between all of the symptoms and my chronic sore throat, after even *more* blood work, the final diagnoses was CEBV (which causes fibro symptoms, chronic fatigue, and immune dificiency- among other things).
I *refuse* to medicate and live in a fog. It can't be cured, it is simply something I have to live with for the remainder of my life... and it is debilitating.
What, if anything, has helped you cope?
Answer by attap5 at 9:47 AM on Jun. 17, 2011
Answer by ochsamom at 10:40 AM on Jun. 17, 2011
Answer by ochsamom at 2:51 PM on Jun. 17, 2011
Not familiar with the CEBV diagnosis. But here's a website you might want to check out http://www.endfatigue.com/ also might try Enzymatic Therapy for supplements to help you out. I hear ribose is good for more energy, better sleep, more mental alertness, and less pain.
Answer by 2autisticsmom at 8:48 PM on Jun. 17, 2011