Hello!I took my 8 year to the bone doctor on friday.He has severe scoliosis it has progressed 12% in 2 1/2 months.Before now it has taken 14-18 months for it to progress 4-19 %.This is the largest and quickest jump.We are now forced to do spinal fusion.He has hydrocephalus(water on brain),three shunts,cerebral palsy,three different types of seizures,asthma,sleep apnea,blind,he eats by g-tube only,he has had 30 shunt surgeries,12 infection w/shunts, 4 blood infections,6 other surgeries through out his small body ,he cannot roll,crawl,walk,talk or reposition .He is in the 95% on the growth chart for his weight and height at 8.He weighs 72pounds. Both of his hips are dislocated.His right shoulder dislocates every time he raises his arm and when I lift him .He can only use that arm to play with baby rattles.He is in constant pain.I just want to know anyone's experience with this surgery.Answer Question
Here's a group on CafeMom that could probably answer your questions better.
Answer by ReneeK3 at 11:58 AM on Dec. 21, 2008
Answer by Anonymous at 1:29 AM on Dec. 22, 2008
Answer by Anonymous at 1:53 AM on Dec. 22, 2008