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anyone have a child that has had spinal fusion?

Hello!I took my 8 year to the bone doctor on friday.He has severe scoliosis it has progressed 12% in 2 1/2 months.Before now it has taken 14-18 months for it to progress 4-19 %.This is the largest and quickest jump.We are now forced to do spinal fusion.He has hydrocephalus(water on brain),three shunts,cerebral palsy,three different types of seizures,asthma,sleep apnea,blind,he eats by g-tube only,he has had 30 shunt surgeries,12 infection w/shunts, 4 blood infections,6 other surgeries through out his small body ,he cannot roll,crawl,walk,talk or reposition .He is in the 95% on the growth chart for his weight and height at 8.He weighs 72pounds. Both of his hips are dislocated.His right shoulder dislocates every time he raises his arm and when I lift him .He can only use that arm to play with baby rattles.He is in constant pain.I just want to know anyone's experience with this surgery.

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Asked by carebear2025 at 11:50 AM on Dec. 21, 2008 in Kids' Health

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Answers (3)
  • Here's a group on CafeMom that could probably answer your questions better.


    Answer by ReneeK3 at 11:58 AM on Dec. 21, 2008

  • I have only seen them done when I was a nursing student, and none on a child with your childs health history. But it's MAJOR surgery and they tend to be in a lot of pain afterwards. There is a lot of physical therapy involved. But of the children I saw, after they were feeling better they were happy they had it done... I think it makes them feel better... especially if it's affecting his lungs.

    Answer by Anonymous at 1:29 AM on Dec. 22, 2008

  • god bless your child....and yourself....stay strong

    Answer by Anonymous at 1:53 AM on Dec. 22, 2008

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