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Hello

Posted by on Jun. 20, 2007 at 12:45 PM
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Since no one has posted anything new I was thinking it might be nice to learn some new things.  So if there are any Syndromes or illinesses you have heard of but don't know much about let me know.  I will be happy to research it and let you know about it.  If this doesn't sound like something anyone would be interested in let me too.

Tricia     
by on Jun. 20, 2007 at 12:45 PM
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momma070506
by New Member on Jun. 24, 2007 at 11:39 PM
Hello, my name is Kelley and my beautiful daughter is Julia. She was born July 5, 2006.  We found out about five months ago that Julia has Moebius Sequence.  Her 7th and 8th nerves are affected, which means she won't have any type of facial expressions.  Her eyes tell her story.  She's a very happy baby.  I just wish that there was more out there about this and that I could find somebody with this so I can discuss what my child will be going through in the future.
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