Another Angel gone

[EJsHottMama]

Just wanted to let everyone know that the link that Kate posted in the "Another Family" post the 5yr old passed away on March 20th. I think they are still waiting on the test for the 3yr old who has a rare symptom and the 1yr old is symptom free according to the web site. The mothers name is Dasa Gain. She has a facebook page if anyone would like to message her and if you want to add her Kate (if you haven't already :))

[delanna6two]

So sad to hear this.... just saw this myself.  Here's a link the little girls mom Dasa posted where you can go and send a letter to Washington to get a bill passed to get more research done on mitochondrial disease like Alper's and others.  It does not take long to fill the form out.  here's the link:

http://www.umdf.org/siteapps/advocacy/ActionItem.aspx?c=otJVJ7MMIqE&b=5709319&aid=12448

This info is posted at her other site

http://thefightagainstalpers.webnode.com/news/alpers-took-her-life-but-were-still-fighting-i-promised-her-/

[misslj]

                    i am soooooo sorry and saddened to hear this. i will be praying for the family. we know where that little angel is,in Gods loving arms. misslj