When and How did you find out your child had Down Syndrome?

Hi i am Jen , my husband found out first that they suspected it and then he and my dr. cane in and told me. It was final about 1 week later with the blood test. Owen is 11 1/2 months old and doing great. We don't have any heart problems, so lucky with that. He does have hypothroidism, he gets a pill everyday to control it. Has all the therapy we can get. He is very social and happy. We can't ask for anything else.

Hi i'm natasha and i found out that cheyenne had ds when i had her. The same day that i had her we found out that she had it. Luckly she hasn't had any major problems. We have had to keep a close check on her blood and stuff but other than that she has been just great.

Hi!! Im Megan. I found out Kaden has ds the day after I had him. Luckily he has no other problems.  Kaden is almost 10 months and doin great. He  can sit by himself, stand w/ support, feed himself, and say mama dada and baba. Kade is the light of our life. He had been in therapy since he was 2 weeks, which has helped  A LOT! We have a PT, OT, service coordinator, and just started w/ the speech therapist. Also we have recently started signing w/ Kaden he has mastered "more" and "all done" Kaden has changed our lives so much and we are blessed to have him.

As soon as Elias was born I knew something wasnt right, he looked so different from my other children.  I told the midwife I thought  he had down syndrome and shge looked at his palms and in his mouth and said no, so then because he was so floppy they called the paed in and he said he thought something was wrong too, and adter three days the tests came back and we were right!  He has no major health issues thank God and is a joy to us and loved by  many.

My son Michael was 6 weeks premature, with an inkling he may have DS, after several blood tests and ultrasounds, they took blood and we waited a bit more than a week, by then we pretty much knew...but what a joy! You are very blessed to have such a healthy boy. Our son was born early, with reflux (had a nissen/fundiplication surgery done) *feeding tube inserted, several holes in his heart *which have healed and needs no surgery to correct. He is on oxygen at night only now (and that is now temporary!), at 18 months he is babbling, crawling and has learned several sign language signs. I'm at work and can't attach a pic, but I will.....he is the love of our lives....could not imagine a day without his tender little hugs!

I was around 14 weeks into my pregnancy.  I had a history of high risk pregnancies and through a sonogram dr found things that pointed to DS.  Caleb was born with bowel obstruction and heart defect.  Two surgeries and nearly 7 years later, Caleb is a joy to all.  The advantage of finding out early for me is that I was totally prepared for Caleb when he was born.  We came home from the hospital already set up with ECI-DEBT and began therapy.  Caleb just finished kindergarten knowing all of his letters and their sounds.  We haven't mastered the blending of the sounds to form words but we will.  Caleb thinks that he is as big and able as his two older brothers.

Hello All!  WE found out about our little Trevor after he was born.  Our OLD pediatrician told us she had some concerns but never ordered the testing until I demanded it at the f/up appt.  This is why is our OLD pediatrician she definately had no bedside manner and to tell us this and not do any testing we felt was wrong! WE waited a month as well, and when we found out I cried that whole day!  But the next day I woke up and said you know what god blessed me with a beautiful baby boy!  I have come to realize that he may have special needs, but he is the love of our lives and nothing could ever change that!  WE are blessed that Trevor does not have alot of the characteristics or problems associated with DS children.  As he gets older I am sure there will be challenges and we are willing to do whatever it takes to make him the best he can be!  WE are always looking to chat with others for support so if ya would like to chat just send me a message.

Tammie

I FOUND OUT THE DAY I HAD HER SHE WAS BORN  5 WKS EARLY SO THEY TOOK HER TO NICU. THE DR CAME AND TOLD HAD TO DO HER SOME TEST B/C SHE SHOW HAD FEATURES OF DS. I CRY I WAS THERE BY MYSELF WAITING FOR SOMEONE TO COME AND TELL ME I COULD GO SEE MY BABY AND THATS WHAT  THEY TELL ME. IT WAS HARD BUT MY BABY IS 17 MONTHS SHE DON'T REALLY HAD ANY BAD HEALTHY ISSUES SHE IS A VERY OUTGOING BABY VERY FRIENDLY SHE MY EVERYTHING.SHE ONLY HAD A PROBLEM WITH HER HEART WHICH THE TOLD WAS IRREGULAR HEART BEAT SHE WAS TAKING MEDICINE FOR IT BUT JUST LAST MONTH THEY GOT HER OFF SO SHE IS DOING SO WELL.RIGHT NOW WE HOPING SHE START WALKING SOON WE WORKING ON IT.

Hi  my name is Deanna,
My son Elijah is soon to be 11.  When i was about 3 months pregnant my doctor told me i had an 86% chance of having a child with Down Syndrome, wierd thing is through out my pregnancy that completely slipped my mind.  After Elijah was born, he looked healthy and happy, had no features or any problems.  Then about an hour before i was to take him home his temp. dropped and he started turning yellow.  He was rushed to the ICU, he had Jaundice.  They worked to get his temp up and put him on oxygen, antibiotics and in a little incubater.  Days passed and still no one noticed any signs of DS, not even his pediatrician.  Then an ICU nurse was feeding him and looking at his hands and feet and notice some distinctive marks (straight line through the palm, webbed toes) She then looked closer at his eyes and mouth, and asked me if she could test him for DS, about 1 week later there was that extra chromosone!  

One year ago today, my ob/gyn called and asked if I would come in to the office for an amnio based on the results of a level 2 ultrasound. 8 days later, on July 29th, I got another call with the results. Aiden has Trisomy 21.