Introduce Yourself! We are up to 665 members!

Hi everyone.......
I just joined CafeMom and this group!  I am married and we have two boys, Rob who is 4 1/2 and Matt who is 16 months.  Matt has Down syndrome and Infantile Spasms.......  what a ride this has been!

Anyway... looking forward to getting to know you all!
Jennifer

My name is Stephanie and I am mommy to Aiden who is almost 11 months and has a little something extra. We got a prenatal diagnosis and Aiden was born premature at 34 weeks. He has AV canal defect, Tetralogy of Fallot, leaky mitrial valve, and a complication from his OHS, chylothorax. Currently he is on a special low fat formula to control the chylothorax.

Welcome and thanks for sharing.  How about the rest of the members?  We want to hear from you!

hi, I'm Jennifer, I'm 21 years old and I live in Ohio.  My husband and I have an 8.5 month old son, named Austin, who was born with Down syndrome. 

**Jennifer~ Mama to Austin (11~6~06)**

Hi i am Jen my husband Blair and I have a 1yr old Named Owen . Glad to be a part of this, thanks for the invite.

Hi, my name is Sonda and I live in San Diego, Ca.  I live with my hubby and 10 1/2 month old daughter, Macaela.  She is the best thing that has happened to me (even though she gets under my skin with her constant yelling if she isn't the center of attention or being held).

Hi I'm Alice, I live in Maryland.   My hasband & I have 3 children- Arek our oldest son is 12, Rhiannon our only daughter is 11 and little Druen our youngest boy is 3 months.  Druen is our DS baby and he has been a blessing in so many ways.

After reading some of the intros I'm really counting my blessings because so far Druen has only been diagnosed with Laryngomalcia and sleep apnea.  We are however awaiting the results of his sleep study yesterday.  But then again he's only 3 months so I guess they can't diagnose everything at once so I'll continue to pray that all is well. 

I salute you moms (& dads too) who have DS children with lots and/or more severe medical issues.  I know just with what I've experienced so far it's been scary for us at times when the formula comes out his nose or he stops breathing, so I can just imagine the extra concerns that go into learning to cope with the so many different challanges our precious little ones face.  Its not like we have the option of learning about just one issue, with DS theres so many different things that can pop up at the next visit that we must always stay on the research page (and all those big medical terms)

But I'm sure as I've heard so many times, they joys they bring make it worth it, even when they want to be held when its time for dinner, or bills, or anything else that says "Mom...stop it's all about me right now"....haha.  (Hey I figure if Druen is going to laugh & smile about everything, then I should learn to live in his stress free world and laugh too....right)

Thanks for the invite & I look forward to sharing experiences and learning from other moms that have already been there as I learn the new world of DS.  It a challange I look forward to & embrace no matter what it may be.

I think you Mommies must be the best MOMMIES in the whole wide world!  That's why God selected you to have a special little blessing in your life.
Celebrate the life of every child!

Carol

Hello everyone!  My name is Misti and I am a mother of the most perfect little eight month old boy (but don't all good parents think that). Will has translocation  Down Syndrome but I could not be anymore proud of him.  He is excelling, do to lots and lots of love and hard work. 

When I first found out he had DS I was upset like all parents I guess but everything I heard almost was negative  I believe everyone needs to hear the good with the bad.  Everyone needs to know the problems that comes with DS but they also need to keep hope that there child can do anything and everything that a child without DS can do.  Then and only then will the child fulfill there full potential.

This is my point of view and I hope it don't ofend anyone.

I will look forward to talking to everone if there is one thing I love to do it is talk and to learn more about my child.

Hello, my name is Vanessa and my son's name is Ethan.  I live in Ohio and am a single parent.  I thought I would give this site a try because being a single mom of a child with DS has not been easy.  Not that I know any different but it seems the medical aspect will never end.  Ethan is the love of my life and would do anything for him. But I find it very difficult to talk to people around me because they do not understand what I go through.  Ethan currently is doing ok with the exception of a surgery coming up.  Ethan has mild DS ( I think) so hard to tell because of all the surgeries and the setbacks.  He currently is about a 9-10 month level.  He currently has daily in home therapy, 5 specialists, a pediatrician, dietician, feeding disorders clinic, 1 out of home therapy, and no help, lol... So it is alot for me to juggle.  My hope for Ethan is for the surgeries to end and for him to have a chance to get on track to see his potential without the setbacks.