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Several years ago........

Posted by on Aug. 19, 2011 at 1:24 PM
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I came to this group and told you how I did not have a child with Down's but how I loved them. My hubby and I always wanted to be able to adopt a special needs child. Nov 21, 2010 I delivered Reagan, my 5th son. It wasn't the easiest of pregnancies but I was older. His due date was DEcember 25th, a Christmas baby. When he was born they said he was perfect, throught the following days we found out that was not so accurate. He was born with 2 holes in his heart and after an echo they found he had pulmonary stenosis, he would have to have a balloon surgery. When he was born he was in his bassinet with his sunglasses on for his jaundice. When I finally got to take him to my room I started to notice things a little "different" about him. The extra fold of skin on the back of his neck, low set ears, floppy muscle tone and the sweetest lazy eye :) I questioned his doctors, they agreed, he was "different" but it wasn't Downs. I was blessed, God had given me my own, we were in love. He stayed in the nicu for a month, it was a roller coaster ride. The stinker had trouble eaing and he had to have every specialist come to see him, he wanted his presence known. He would pass but "fail" test. Uhg. I stayed with him through it all. I sat in a rocker and held him all day long. Memorized evrything about him. Finally got to come home a few days before Christmas. January 3rd he had his cardio appointment. We found out he would have to have open heart surgery instead of the balloon. We were scared but had faith, never thought I would walk out of the hospital without him. He wasn't quite 8 weeks old when he had his surgery. The next 2 weeks were  a nightmare and once again, I never left his side. Jan 31 the doctors told us there was nothing left they could do for him, we sobbed. We let him free. I still miss and mourn him EVERYDAY, but I love him beyond anything and always will. THey told us they think he had Noonan syndrome. I just wanted to let you know that I had the pleasure of being chosen for a very special little boy. We are expecting again and I am very high risk we will go for our nt scan September 7th. This will let us know if this little one has a risk for heart defects.. I just pray we get to keep this little one. Congrats ladies and I still come and visit and read your stories.

 

i

by on Aug. 19, 2011 at 1:24 PM
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Replies (1-5):
SarahsMom07
by Member on Aug. 19, 2011 at 5:31 PM

 

Thank you for sharing you story and good luck with your pregnancy!

VeronicaTex
by on Aug. 20, 2011 at 9:32 AM

Good  morning...

What a beautiful sharing....

God is bringing more and more people of faith and love into my life lately....

I am so blessed!!!!

Take care...

I will be praying for you.....

deborib1
by Member on Aug. 20, 2011 at 9:43 AM

God never makes a mistake.  You are expecting again because God knows what a great Mom you are.  He knows the desires of our heart and he is blessing you.  I will be praying that God blesses you with a healthy beautiful baby.  HUGS to you!

justamomof4
by on Aug. 20, 2011 at 12:13 PM

Wow! You all brought me to tears. Thanks so much.

aliciajacinta
by Member on Aug. 20, 2011 at 2:23 PM

Good luck with this new baby,but do not despair if you have another baby with a heart defect and possibly down syndrome.When our daughter was born,we were informed that she had two large holes in her heart, but before she was sent home,the hospital pedi,(not the one we requested)wanted to do surgery one her even without telling us,but one of the staff doctors told my father what was going on and the surgery was stopped,for she would not have with stand the surgery.She was sent home and we monitored her,until she was about 5 months,and a little strong she underwent surgery for her heart in December. The surgery was long,my husband cried and worried about her condition, i myself was in the surgical room unit,with my father. She was in the hospital about two weeks and was then dismissed. She came out with no complication ,she has accomplished a lot thru out her life time. And she just turned 22 years old in July. Our prayers will be with you always.

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