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breastfeeding ?

Posted by on Mar. 28, 2013 at 10:09 PM
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I want so much to BF my baby girl. She is 11 days old and yes, she has Trisomy 21. She has a good suck but i was told her mouth is small and she is a little hypotonic. She has latched a few times but now im pumping and bottle feeding. She takes bottle well but my pumping is barely keeping up. Has anyone else bf their DS baby ? Did it take a while to get them to latch ? This is my 3rd baby and i nursed the others with no problem. Any advice please... She is so precious to me and i know she really needs my breastmilk.
by on Mar. 28, 2013 at 10:09 PM
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ajs34
by Member on Mar. 29, 2013 at 7:51 AM
The only problem I had was my son not swallowing fast enough and I always got soaked from what leaked out his mouth. I have Hurd that it can be difficult. At one point I switched to a bottle because he kept choaking when he went from breast to bottle. As long as she is healthy the little bit of breast milk is better than none.
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jjamom
by Silver Member on Mar. 29, 2013 at 9:03 AM
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It was a struggle to BF my son with DS, but I did do it for about 5 mos. He was 5 weeks early, so I also had to supplement with high calorie preemie formula, but I always nursed first, then did the supplemental bottle.

One thing I found very helpful (actually a lifesaver) was using a nipple shield. It seemed to give him a better ability to latch on and stay latched on. I got it from my lactation consultant. Do you have a lactation consultant? I would ask about the nipple shield and also about a booklet I was given from LaLeche League on breast feeding a child with Down syndrome. If your lactation consultant doesn't know about the booklet, you could contact LaLeche League directly.

My son was also my third and I also BF my other two, but all were preemies and it was a struggle with all three, because I had to do the supplementing with all of them. Hang in there. I know it can be hard, but can also be so worth it. So, if you really want to do it, it is possible!
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momalee40
by New Member on Mar. 29, 2013 at 11:01 AM
Quoting jjamom:

It was a struggle to BF my son with DS, but I did do it for about 5 mos. He was 5 weeks early, so I also had to supplement with high calorie preemie formula, but I always nursed first, then did the supplemental bottle.

One thing I found very helpful (actually a lifesaver) was using a nipple shield. It seemed to give him a better ability to latch on and stay latched on. I got it from my lactation consultant. Do you have a lactation consultant? I would ask about the nipple shield and also about a booklet I was given from LaLeche League on breast feeding a child with Down syndrome. If your lactation consultant doesn't know about the booklet, you could contact LaLeche League directly.

My son was also my third and I also BF my other two, but all were preemies and it was a struggle with all three, because I had to do the supplementing with all of them. Hang in there. I know it can be hard, but can also be so worth it. So, if you really want to do it, it is possible!

. I feel so helpless with her diagnosis that its like BF is the only thing i can really do.at this point to help her. She still tries to latch on but doesnt seem to be able to coordinate everything. She has a hard time w the bottle also, gulps it down most of the time and gets alot of air. I have tried 3 diff types bottles and nipples so its just her. But, she is being fed and gaining weight so i should be happy. I just miss that feeling of having baby nursing and snuggled up. I will never just prop her up w a bottle though.
Evana
by Member on Mar. 29, 2013 at 6:05 PM
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My daughter had too weak of a suck to bf. She had a heart defect though so that was most of her problem. She didn't take a bottle well either. If there's  a breastfeeding consultant available, I would suggest that. But, I could never find one.

mommieto608
by on Mar. 31, 2013 at 1:36 AM
I tried several times, she has a partial avsd so she tires, I do pump for her though. Keep trying and congrats.
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mommieto608
by on Mar. 31, 2013 at 1:37 AM
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Did she have surgery?

Quoting Evana:

My daughter had too weak of a suck to bf. She had a heart defect though so that was most of her problem. She didn't take a bottle well either. If there's  a breastfeeding consultant available, I would suggest that. But, I could never find one.

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Amy6034
by New Member on Apr. 1, 2013 at 1:43 PM

it took my daughter about 5 to 6 weeks to latch on and Breast feed.  i think she needed time to gain the strength and i never gave up trying.  Every feeding i tried to get her to latch on.  she would get really mad, but once she got did not want to stop.  I stopped BF at 17 months. 

momalee40
by New Member on Apr. 1, 2013 at 7:47 PM
[quote name="Amy6034" id="0"]

it took my daughter about 5 to 6 weeks to latch on and Breast feed.  i think she needed time to gain the strength and i never gave up trying.  Every feeding i tried to get her to latch on.  she would get really mad, but once she got did not want to stop.  I stopped BF at 17 months. 

[/quote. Thank you, i keep trying with her and she wants to but cant seem to get the idea of keeping her mouth open wide. Im having trouble with my supply also . I started taking Mothers Love supplement to try to help. She does so much better on the breastmilk, no spitting up or anything.
Evana
by Member on Apr. 1, 2013 at 8:31 PM

Yes, my daughter had 2 open heart surgeries for a complete AV canal heart defect. 

dedicatedrider
by Member on Apr. 1, 2013 at 8:34 PM

I breastfed my son.  It was a LONG road, I spent about the first month pumping and bottle feeding before we really got going well.  Even then, it always took him a LONG time to nurse.  At first, I was nursing for an hour every other hour, eventually he got nursing sessions down to 30 min., but it was definitely hard work for him.

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