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I want so much to BF my baby girl. She is 11 days old and yes, she has Trisomy 21. She has a good suck but i was told her mouth is small and she is a little hypotonic. She has latched a few times but now im pumping and bottle feeding. She takes bottle well but my pumping is barely keeping up. Has anyone else bf their DS baby ? Did it take a while to get them to latch ? This is my 3rd baby and i nursed the others with no problem. Any advice please... She is so precious to me and i know she really needs my breastmilk.
by on Mar. 28, 2013 at 10:09 PM
Replies (11-16):
MamaNurse199
by Member on Apr. 4, 2013 at 4:37 PM
I bf my oldest who has ds. I used a nipple shield for the first month and after that he latched on all by himself. I bf him till he wad 14 mths old. Be persistent and if possible try not to go back and forth between breast and bottle until she has really gotten the hang of it. In the beginning my milk would go everywhere so I always had a little towel under his mouth to catch the overflow.
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jenninak
by New Member on Apr. 9, 2013 at 11:26 PM

I've had luck bf'ing since my daughter was born but now she falls asleep every session. We have taken to pumping/bottle so she gets full milk - she wasn't even draining a breast and it was making sessions take over an hour. Anyone else had this issue? We're having luck with the pump/bottle system, but I feel guilty. 

jjamom
by Silver Member on Apr. 10, 2013 at 9:13 AM
This was common for me, because all of my babies were preemies. It took them quite a while to stop falling asleep during nursing. The NICU staff even had me try tickling my DD's feet and a few other strategies that I just felt so guilty about. They eventually became more alert through the feelings. Don't feel guilty, i give you credit for the fact that you are still pumping, many people would have given up more easily. You can still bond with the baby with bottle feeding, IMO.


Quoting jenninak:

I've had luck bf'ing since my daughter was born but now she falls asleep every session. We have taken to pumping/bottle so she gets full milk - she wasn't even draining a breast and it was making sessions take over an hour. Anyone else had this issue? We're having luck with the pump/bottle system, but I feel guilty. 


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jenninak
by New Member on Apr. 10, 2013 at 2:21 PM
1 mom liked this

Thank you jjamom! Nice to hear I'm not alone on this - so frustrating but I'll do whatever I can.

DJMOMMY926
by Member on Apr. 23, 2013 at 6:55 PM

I tried to BF my son with DS but he would not latch on either. I tried pumping, but just like you I couldnt keep up. So I ended up giving him formula which I didn't want to do. Good Luck.

ainstalshia
by Member on Apr. 25, 2013 at 6:53 PM
1 mom liked this

I did BF my little girl with down syndrome and we did it succesfully for 12 months. I wanted so desperatly to give her something and I worked hard at making it work. The nurses told me at the NICU that it was very hard to nurse a child with down syndrome because of their larger tongues and loose muscles. I wish had more advice for you but I mainly just want to encourage you to keep trying and let you know that it is possible! Get help from the NICU where you delivered ask to see a Lactation Specialist. I know that your already discharged but contact the La Leche Leage to see if they can arrange for you to see a Lactation Specialist. We did have an issue of my daughter occasionally gagging but her pediatrician showed me how to tilt her to the side to clear her airway. Ask your pediatrician as well for some help and good luck I know how much you want this! I was desperate to make it work as well

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