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Posted by on Jan. 4, 2015 at 4:29 PM
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 Hi Cafemoms,

My name is Jody, I am 36yrs old I am a mom of three kids. My two girls one that is 13 yrs old and the other is 9yr old. Which both have neurofibromatosis.  The one that is 9yrs old was also born with spina bifida,hydrocepolaus, and cleft palate. My boy who is also 9 (and also her twin has no problems. I also have been married to my husband for 15yrs. But I come to you other moms to see is you can help me out with my special needs girls. Because I am having a hard time with their problems, mostly because  I have had a tumor removed when I was 14yrs old myself.  Even though I am physically able to function, I will never be 100% and since like me they have memory problems, I am unable to help them remember things. I have been trying so hard to figure things out myself. But I am about ready to pull my hair out. PLEASE PLEASE HELP MEpunching

by on Jan. 4, 2015 at 4:29 PM
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jas_momof2
by on Jan. 9, 2015 at 11:31 PM

Hello!  What did you need help with?

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