Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Welcome to the group! Please share your story!

Posted by on May. 24, 2009 at 12:45 PM
  • 0 Replies
  • 220 Total Views

I started this group because my ds Dominic has 2 blood disorders, Thalassemia and Iron Deficient Anemia. I don't know that there is enough awareness for these types of disorders and other anemia's such as Sickle Cell. I had to be assertive with my pediatrician and basically tell her that he needed to see a Hematologist. His iron counts were so low and my pedi was obviously uneducated about this particular disorder because she didn't even know to send him to a specialist. His counts were, and still are so low it's a wonder he's getting any oxygen to his brain. We are working with the hematologist to bring his levels up with an intense  iron therapy supplement. There may be more down the road to deal with, including the possibility of blood transfusions. I encourage you all to share your experiences and possibly become more involved in raising awareness to others... I know I certainly will!!!

by on May. 24, 2009 at 12:45 PM
Add your quick reply below:
You must be a member to reply to this post.
Replies:
There are no replies to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)