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How long have you had Thyroid problems?

Posted by on Jul. 8, 2011 at 8:03 PM
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 When were you first diagnosed? 

What symtoms did you have, if any before you were diagnosed?

I was first diagnosed in 1997 and then I was put on Synthroid. Stopped taking it and then many years later it was checked again ( I didnt have insurance a few years ) and put on Levothyroxine in 2008. 

So far my levels have been in the normal range, when checked every 6 months but the weight gain was not fun. It's weird how I still lose a bit of hair just about every day it seems. 



by on Jul. 8, 2011 at 8:03 PM
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Replies (1-10):
Sunshine201
by on Jul. 8, 2011 at 8:12 PM

I was diagnosed in 1997 also....and like you I was put on Synthroid, but after a month I noticed my hair was really falling out..so my doc switched me to Levoxyll(brand name only) and my hair stopped falling out. I take a large dose everyday though 225mcg.... and I still never feel 100% and weight is always an issue.

lapizz
by on Jul. 8, 2011 at 8:25 PM

11th grade...so that might have been 1988? I was sooo tired....I was working in a store after school - and by 8-9 pm, my vision was blurry (couldn't read the wall clock with glasses on)...What else? I put on weight for the first time in my life...Depressed....

I was told that I am hypo and have Hasimoto's autoimmune disease. Then about 8 years ago, I went to a new endo who also said that I have the 2. The weird thing about the thyroid - everything can affect your levels, so you have to keep going to your endo every 6 months....After having my second son, my levels were off the charts - and I had no idea until my reg dr did annual blood tests -- so I learned to go to the endo more religiously.

dizzyseagull
by on Jul. 9, 2011 at 1:50 AM

I was first diagnosed with hypothyroidism in September of 2008. I was around 22 weeks pregnant. I onlu found out because I had heart aplitations for 4 hours straight and I told my doctor (I go to a Family Doctor) and he suggested having my thyroid checked and it was that.

At the time the only symptoms I knew I had were palpitations..  Then when I had my son I had my levels checked and went off medicine.. several months later I started having alot of symptoms.. I had some before but didnt know they were symptoms.. anyways I had palpitations, hair loss (lost quite a bit above my temple areas), constipation, hard to lose weight, dry skin, I got split ends dotn know if its from tthat or not but I didnt have any before,  very tired.. made it hard to work since I work in the evenings and with out fail right before work I would get soo tired!

Im on levothryoxine 100mcg

I think Im started to have some hairloss above my temples again.. its noticable to me.. and sometimes when I put my hair up my haird is loose and I can feel some strands just come out..  I just had my levels checke din march and I go back again in September.

LilyPondOasis
by Lily -Group Owner on Jul. 9, 2011 at 1:52 PM

It is something at how your levels not being under control that it can affect your whole system. I am on levothyroxine 50mg a day. 

I don't have the depression but I can get angry at the the drop of a hat! Or flying off the handle a bit quick. But Im learning not to "over react" so quick to things. My son can do the silliest thing to get me mad and Ive learned he does it on purpose.....just him being a kid at age 7 and the clown he is! He gets that from me! 

I sure hope that you are all able to get your thyroid levels under control and it IS important to get them checked every 6 months.

Our bodies are always changing....I have been going thru menopause for years now so at almost 49 years of age... its not fun having everything hit me at once which is what it seems like!! 

Old age is a creeper! LOL 

Hope you all have a wonderful day! Thanks for posting!

tyjaxmama
by on Jul. 9, 2011 at 2:00 PM

I was diagnosed with Graves Disease in 2005. I was inthe ER for a gall bladder attack and my heart rate was so elevated they thought I was having a heart attack. I had all the symptoms for years but never went to the doctor because I didn't have insurance.

In 2008 I was making decent money at a job so I started going to the Endo regularly, my TSH level was like .0007 and T4 Free was like 6.75. I was on Tapazole, plus a beta blocker to slow my heart rate but after about 8 months I moved to a new state and once again could not afford to go to the doctor.

I have been seeing my regular physician for about a year now, visited the Endo twice but can't afford to go to him. My levels were back to being super out of whack but are slowly getting better. I am once again on Tapazole, Inderal and Lisinopril now for high blood pressure. Hopefully I can continue with care and go into remission. My Endo recommends I have a partial thyroidectomy but I am hoping to go into remission with the meds and not do surgery.

LilyPondOasis
by Lily -Group Owner on Jul. 11, 2011 at 3:53 PM

I had my gall bladder out in 1997... I understand how you feel. Do you still have your gall bladder? 

I hope they can get everything under control for you with the medications. I know there has to have been some improvements with medicines to treat it, Ive never heard of a partial thyroidectomy. 

I take lisinopril, carvedilol and cozaar for high blood pressure. 

Hope everything works out for you! Keep us posted.

group hug

Quoting tyjaxmama:

I was diagnosed with Graves Disease in 2005. I was inthe ER for a gall bladder attack and my heart rate was so elevated they thought I was having a heart attack. I had all the symptoms for years but never went to the doctor because I didn't have insurance.

In 2008 I was making decent money at a job so I started going to the Endo regularly, my TSH level was like .0007 and T4 Free was like 6.75. I was on Tapazole, plus a beta blocker to slow my heart rate but after about 8 months I moved to a new state and once again could not afford to go to the doctor.

I have been seeing my regular physician for about a year now, visited the Endo twice but can't afford to go to him. My levels were back to being super out of whack but are slowly getting better. I am once again on Tapazole, Inderal and Lisinopril now for high blood pressure. Hopefully I can continue with care and go into remission. My Endo recommends I have a partial thyroidectomy but I am hoping to go into remission with the meds and not do surgery.


KamsOne
by on Jul. 11, 2011 at 6:32 PM

Oh boy.  I don't remember exactly when I was diagnosed.  I think I might have been 10.  I used to go into Boston to see a specialist for my back (I had scoliosis when I was little but it fixed itself) and during one of my visits they discovered my thyroid levels were off.  I'm 36 now so I guess it's been about 26 years!

I was on the same dose until I started smoking at 17.  Then it changed again when I got pregnant at 30.  Then I quit smoking at 33 and my levels went all whacky.  I don't think they've been right since.  After changing doses about 3 or 4 times the doc says my levels are fine.  I know they are not.  I really need to make an appt with an endocrinologist but just haven't done it yet.

LilyPondOasis
by Lily -Group Owner on Jul. 12, 2011 at 2:22 AM

Goodness! That's a pretty young age to be diagnosed w ith Thyroid issues. I hope they can get them sorted. Like you I feel mine aren't OK. I am still one whom loses alot of hair. Not in clumps, but every time I brush it it seems I lose ALOT. 

I have levoscoliosis and just diagnosed last Thursday with disc protrusion and Im to see pain management and if they cant help me, then surgery may be needed. I have degenerative disc disease and this was the first MRI I had......but Im in constant pain and have been, just procrastinated about seeing a doctor for it and used to bite the bullet over the pain. So being I dont get seen til October... I get to live with it. Not fun at all. 

Glad to know your scoliosis corrected itself! If only I were as lucky. I know MANY have surgery to correct it. 

Quoting KamsOne:

Oh boy.  I don't remember exactly when I was diagnosed.  I think I might have been 10.  I used to go into Boston to see a specialist for my back (I had scoliosis when I was little but it fixed itself) and during one of my visits they discovered my thyroid levels were off.  I'm 36 now so I guess it's been about 26 years!

I was on the same dose until I started smoking at 17.  Then it changed again when I got pregnant at 30.  Then I quit smoking at 33 and my levels went all whacky.  I don't think they've been right since.  After changing doses about 3 or 4 times the doc says my levels are fine.  I know they are not.  I really need to make an appt with an endocrinologist but just haven't done it yet.


melaniesmom0683
by on Jul. 21, 2012 at 5:07 PM

I was diagnosed with Graves Disease in May of this year. I lost about 50lbs earlier this year which really revealed my overactive thyroid.  My hair started to fall out pretty badly last year and after my huge weight loss I started to have heart palpitations, hot flashes, night sweats, all got damn day sweats, irritability, missed periods and insomnia. Back in May when I was diagnosed I had health insurance through a temp company I worked for at the time, but now I don't have insurance.  

I was put on Methimazole 10Mg and Propranolol 20Mg both I have to take twice a day.  Each month I pay $54 for both prescriptions and now I can't afford to have blood work done every 30 days like I should because I lost my job earlier this month and the health insurance a couple of days after being diagnosed with Graves. I applied for Medi-Cal but of course I haven't gotten a final decision yet as to if I am approved or not yet. I hit rock bottom this week feeling like I should just crawl under a rock and live out my days under it.  My head has been pounding everyday for the past two weeks, with extreme fatigue and tiredness, muscle aches and feeling like I have been straining my muscle every time I go to do anything.  I went to the hospital last night and was told that the symptoms I have been having is not an emergency type situation and they sent me down to East Los Angeles to the county hospital where the wait was 20 hours to see a doctor.  If I would have stayed there last night to see a doctor I still would be there still waiting until later on tonight. My poor husband had to literally carry me out of the ER waiting room because I felt like hopeless and couldn't stop crying.  So Monday I am determined to find a clinic I can go to so that I can at least get some kind of decent care until either Medi-Cal comes through or I can get a job that provides good health insurance.

I am frustrated to no end at this point and I can't function and live my life this way. My husband doesn't understand and he adds to my stress. So I told him he needs to read the literature about Graves Disease because frankly I'm tried of being misunderstood all the time. My poor 5 year old doesn't ask me for anything unless she can't get it herself from the kitchen, she is such a sweet kind little girl but I feel like I am not capable of being the mother she needs.  


LilyPondOasis
by Lily -Group Owner on Jul. 21, 2012 at 8:12 PM
Hi and welcome to the group! I am so sorry you are having these issues and you do not have insurance at the moment. I found a site online -- not sure if will help or not, but if you have a HEALING HANDS MINISTRIES -- they offer medical and dental services at very low cost -- as well as some of these clinics. Not sure too if this will be of some help either -- but here is a link: http://www.altamed.org/contact_altamed/orange_county_locations
For some reason my cafemom page is not loading right so I cant put the link in or change text or anything. Not sure why its messing up on me!! I wished I knew how to be of more help. I STILL lose alot of hair with my thyroid issues. I just had my blood drawn after 6 months ( they checked it every 3 months, then back to 6 months now ) but I am one crabby person -- plus add to that I AM going through MENOPAUSE!! DOUBLE JOY! SO NOT !! LOL I have an 8 yr old son and I have those days and he can make his own cereal and sandwiches so thats a good thing.

Hope you can get seen soon for this and your blood levels checked -- I am only on Levothyroxine -- its been upped 3 times in 3 years. The symptoms are so frustrating and it can take its toll physically. I hate it too.

Good luck and keep us posted! ♥HUGS♥
Quoting melaniesmom0683:

I was diagnosed with Graves Disease in May of this year. I lost about 50lbs earlier this year which really revealed my overactive thyroid.  My hair started to fall out pretty badly last year and after my huge weight loss I started to have heart palpitations, hot flashes, night sweats, all got damn day sweats, irritability, missed periods and insomnia. Back in May when I was diagnosed I had health insurance through a temp company I worked for at the time, but now I don't have insurance.  

I was put on Methimazole 10Mg and Propranolol 20Mg both I have to take twice a day.  Each month I pay $54 for both prescriptions and now I can't afford to have blood work done every 30 days like I should because I lost my job earlier this month and the health insurance a couple of days after being diagnosed with Graves. I applied for Medi-Cal but of course I haven't gotten a final decision yet as to if I am approved or not yet. I hit rock bottom this week feeling like I should just crawl under a rock and live out my days under it.  My head has been pounding everyday for the past two weeks, with extreme fatigue and tiredness, muscle aches and feeling like I have been straining my muscle every time I go to do anything.  I went to the hospital last night and was told that the symptoms I have been having is not an emergency type situation and they sent me down to East Los Angeles to the county hospital where the wait was 20 hours to see a doctor.  If I would have stayed there last night to see a doctor I still would be there still waiting until later on tonight. My poor husband had to literally carry me out of the ER waiting room because I felt like hopeless and couldn't stop crying.  So Monday I am determined to find a clinic I can go to so that I can at least get some kind of decent care until either Medi-Cal comes through or I can get a job that provides good health insurance.

I am frustrated to no end at this point and I can't function and live my life this way. My husband doesn't understand and he adds to my stress. So I told him he needs to read the literature about Graves Disease because frankly I'm tried of being misunderstood all the time. My poor 5 year old doesn't ask me for anything unless she can't get it herself from the kitchen, she is such a sweet kind little girl but I feel like I am not capable of being the mother she needs.  


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