Hello everyone! I'm Colleen and I'm new to the group. Last summer I tested positive for the BRCA1 gene. I tallied in as the 7th out of 9 women in my family that tested positive. As of right now I'm the only one who has not had a double mastectomy yet. I am only 25 so they want to wait a few more years before they do it. I have been battling with the fact that I may lose my nipples, that I will have franken-boobs (my cousin's term) and most of all which surgery to try for; implants or the DIEP flap. My cousin got the DIEP flap and let me tell you, the picture of her breasts post surgery truely terrify me. I know I sound vain but my breasts have always been a point of pride for me. I'm already bitter that I'm going to lose sensation in my breasts, but to have them covered in scars as well is almost too much for me to handle. My sister had implants as well as the rest of my cousins who had double mastectomies, but my sister is not doing well. She has had (to date) 6 surgeries as her body kept rejecting the implants or wouldn't heal correctly. She currently doesn't have any implants at all so her body can heal but she is looking at roughly 2 more surgeries at least. I'm nervous because I have most of the same issues as she does medically (we both have POTS postural orthostatic tachycardia syndrome) and I'm afraid I'm going to have the same problems with my body rejecting implants. So I guess I'm just asking for stories...what surgery did you have, what were your results, what do your breasts look like (in any other group I know that this would sound like a super creepy question, and I promise I'm not a creeper!).
On a cheerier note, I'd also like to share my cousin's miracle story. She was diagnosed and treated for stage 3 breast cancer and as it was so aggresive, she did not have time to harvest her eggs. She was told that she would most likely be infertile after the chemo and to prepare herself to not have any more children (they had one girl and wanted more). She had just kicked cancer's ass, had the DIEP flap and amazingly got pregnant without even trying! She just had her son on the 9th! Dean weighed in at a whopping 9 lbs 1.5 ounce beating my own son (who held the record for heaviest baby in my family) by a half an ounce. She even did an article for babycenter about it.