My son is now 21mths old. He has ha a very rough first 2 years of his life. He was diagnosed with pyloric spasms, severe gerd, severe case of aspiration. At 2 mths old he was put on an ng tube and could not take anything orally. I had to change his tube weekly. The first 2 months all he did was cry 24 7. And they kept tellingly he was colic. It took me a while to find a dr that would listen to me and do some testing. At about 6 mths he showed no signs of aspirating and we were able to give him a bottle and start really slowly start him on solids. At this time my som was behind developmentally bc we were not able I put him on his belly due to how severe his reflux was. He was actually loosing weight and lost about 4 lbs in 2 mths. After changing his mess we finally got it under control. At 9mths we did testing to see if e qualified for therapies and to see how far behind he was by using help me grow. We were put on a waiting list for speech and physical therapy. At this time he was just sitting up by himself without support. No standing up or pulling himself up or making any sounds. So I starting to work with him on standing up. He would stiffen up and I coul not get his body to relax. So we finally started pt and the therapist also made a comment about how he stiffens up. So at his twelve month wellness visit I asked the dr about it bc it wasn't getting any better. She recommended we take him to a neurologist. So I mad the appt and of course it took us forever to get in. My sons GI dr recommended making an appt with a physiatrist which is a muscle dr. So we see the neurologist durst and he tells me that my son has hypertonia which is stiffness of the muscles and orders an MRI. And of course it didn't didn't show anything. The physiatrist put him on a muscle relaxer and said that they are thinking it might be cerebral palsy. My son is now 21 mths and still is not walking and is vocalising a little. The frustrating thing is non of the drs can tell me what the diagnosis is and non of the tests are showing anything. And the only thin we know for sure is that my son has a developmental delay and they do not know what it is. I am so frustrated bc I cannot get the help until we have a diagnosis. My son has special needs and I love him to death and on a plus note he is a very happy boy. I just want to know.
on Jul. 17, 2012 at 8:39 PM