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We are in the beginning of process for my 5 month old!

Posted by on Aug. 12, 2012 at 1:39 AM
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 We have a beautiful 5 month old little girl Lillyana. We just found out that we are having to see a specialist due to the fact she may have Dwarfism. I am not sure what to think, how to feel and I am just scared and would like to meet someone who has been in my boat or just someone who can talk! I feel SO alone in this and it has consumed me since I heard the news from the Dr.

by on Aug. 12, 2012 at 1:39 AM
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Replies (1-5):
Icesfire
by Member on Aug. 13, 2012 at 12:48 PM

I have not been throse testing for Dwarfism but I am formily with waiting for test and the waiting for specialist. I know it not the same thing but if you even need to talk feel free.  I may not get back to you the same day as I am a single mom of 2 with a onther on the way. But I do my best to replay the same day.

newmommy-again
by Member on Aug. 25, 2012 at 11:50 AM
Always remember the dx is what you make of it - even if it is a hard one. Get all the info you can (and not just from docs) on the dx, what to expect, treatment, support groups, etc. Knowledge is power!
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sarahw06219
by Member on Aug. 27, 2012 at 1:09 AM

I'm sorry you're going though this :(  it is heartbreaking to think that your child may be facing many challenges that you didn't expect.  Remember, the diagnosis is just information that allows you to get treatment etc for your daughter to help her reach her full potenetial.  A diagnosis does NOT change who she is or affect her outlook- that stuff is what it is, and you already love her the way she is! 

busy_cofee_fan
by New Member on Sep. 16, 2012 at 2:45 AM

I totally feel you! Don't feel alone in your situation. Just know that when ever something traumatizing happens and your child is involved, it's normal to feel that way. You will survive just hang in there. :-) Luckily there are sites like this were you can reach out to others who have been in the same type of situation and to help guide you in the right direction!

Something that I like to tell a lot of people is that if it gets too overwhelming to the point of depression, just take it one day at a time. I feel your sorrow but hang in there gal! If there is anything else you would like to spill or ask just message me if you need!!! I've been there and I know all about it. 

busy_cofee_fan
by New Member on Sep. 16, 2012 at 2:48 AM


Quoting TinaBaby1987:

 We have a beautiful 5 month old little girl Lillyana. We just found out that we are having to see a specialist due to the fact she may have Dwarfism. I am not sure what to think, how to feel and I am just scared and would like to meet someone who has been in my boat or just someone who can talk! I feel SO alone in this and it has consumed me since I heard the news from the Dr.

I thought I would give you a little bit of something that I had written for this very same feeling that you are feeling right now. :-)

http://www.roughbalance.com/18/in-despair-with-a-disabled-child-this-is-my-ah-ha-moment/


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