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appropriate comment from pediatrician?

Posted by on Oct. 4, 2012 at 6:32 PM
  • 15 Replies

Sam has his well visit today.
KNOCKING on my head, he is a pretty healthy kid. So, we really do only see my pediatrician about 4 times a year- TOPS. Occassional ear infection when he was a kid, occassional fever but simple stuff.

Today she asks Sam how things are going in school he says good-- then goes back to reading the High Lites magazine.. she asks me.. "good?" I knock on my head.. LOL.. start saying that I think with all the support he has this year (compared to last), he is doing great. She asks me if he is mainstreamed.. I tell her "collab class this year... still getting occupational therapy, physcial therapy... special bus-- doing great! Just got a note from teacher how pleased theyve been. He is just doing super!"
She tells me she has health forms for school... and then asks if I want her to put his Aspie diagnosis on the school forms. I say, sure...they know, but it's probably better to put it on there...

THEN she says.. "You know, I dont see it. I never really have. I dont think he is on the spectrum."

MY BLOOD BOILED! You see him for maybe 1/2 hour to 40 minutes a YEAR and your surprised you dont see it?!  

I actually said back... "Really, you dont see him long enough to make that call."

Im a little pissed and hurt.




by on Oct. 4, 2012 at 6:32 PM
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Replies (1-10):
Mom2jngnc
by Stephannie on Oct. 4, 2012 at 6:35 PM

I think anyone who isn't around a child on a regular basis doesn't see it. 

 

SamMom912
by Platinum Member on Oct. 4, 2012 at 6:38 PM


Quoting Mom2jngnc:

I think anyone who isn't around a child on a regular basis doesn't see it. 

 


So you think my response is a fair response then. She doesnt spend enough time to make the call... She's not a neuro!

Cecelia712
by Gold Member on Oct. 4, 2012 at 8:25 PM
1 mom liked this
I agree, she's not trained to make that diagnosis. Because he can present as just an average kid for the 10-15 min the dr sees him doesn't mean there aren't issues going on. ANY child can behave for that short of a time span. She hasn't run tests on him, hasn't engaged him enough to see his responses. I think it was a bit out of her league to make that comment.especially since no one is claiming he is full on autistic or severely autistic. He's simply "on the spectrum" so yeah sure he can present as just fine, till something comes along that throws him off his kilter.
I did speak to my ped in detail about G while he was getting all his tests done, but because I had the baby we were there a lot so he was seeing us all the time. And since I did "die" twice during the c section and giuliana momentarily flatlined before they got her out she was being see often to make sure no issues were present. (Thankfully there are no problems with her!) So I valued his opinion on things. We all knew something was wrong with G, we just didn't know what.
2 drs diagnosed him as autistic but I disagreed. He has great eye contact. Is very affectionate. Is social. He just had the speech and physical delays, which turns out was caused by the stroke he had. The dr agreed w me that he was in no way on the spectrum at all and to look for different answers. But again, with 3 kids and especially a baby we were there every 2-4 weeks and he would go out of his way to engage G to see how G reacted.
I say don't let what she said upset you. You've had him tested. You've done your research. He has all his therapists who obviously agree so she is just 1 person. And as a Mom, YOU know best. You see all his moods. So I'm sorry she upset you but I wouldn't waste my time letting it bother me because asyou said, she barely sees him.
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lizmarie1975
by Liz on Oct. 4, 2012 at 9:04 PM

I'm sorry, Scarlett. She should have known better.

MELRN
by Bronze Member on Oct. 4, 2012 at 9:08 PM

have you had him officially diagnosed with r/o neuro?  I can't understand a Md saying that with all the testing right in front of them???


as for put it on the school forms  it is because of the life long impact that can have on him.....  we see a specialist  for my son  he is ODD with anxiety fully documented with his physicians but there is NO WAY I would let them give that information to an official school record  it has a life long negative impact  irrespective of the short term good impact the means doesnt justify the ends 

Mom2jngnc
by Stephannie on Oct. 4, 2012 at 9:25 PM
1 mom liked this


Quoting SamMom912:


Quoting Mom2jngnc:

I think anyone who isn't around a child on a regular basis doesn't see it. 

 


So you think my response is a fair response then. She doesnt spend enough time to make the call... She's not a neuro!

yes I do, I am sorry...... 

Stephannie, wife to John, Mom to John, Garrett, CJ and Alex
full-time Auntie to Carly-Ann

 
New York Moms
Join us on The New York Moms Group! - - NY Moms Group Mod

SamMom912
by Platinum Member on Oct. 4, 2012 at 10:03 PM
Quoting MELRN:

have you had him officially diagnosed with r/o neuro?  I can't understand a Md saying that with all the testing right in front of them???

as for put it on the school forms  it is because of the life long impact that can have on him.....  we see a specialist  for my son  he is ODD with anxiety fully documented with his physicians but there is NO WAY I would let them give that information to an official school record  it has a life long negative impact  irrespective of the short term good impact the means doesnt justify the ends 




Ive taken my son to a pediatric neurologist who gave him a dx of aspie. I brought him to a developmental pediatric psychiatrist who specialises in aspies and she said she was on the fence with dx... He was either very HFA or borderline. I brought him to a hiighly recommended ped neuro team that i had to wait 8 months for appointment and they said hfa or pdd only time will tell..he was 4.5 at the time.
The school psychologist did psych eval last march/april, she believes sam is aspie.

I have no problem with them having aspie on his school records. He needs to be in a collab class, with modifications and a special bus. He is brilliantly smart, doing 2nd grade math and 3rd grade reading. He does science projects at home for fun! But he cant always self regulate, has sensory issues, has social delays, ot delays, pt delays, and has horrible anxiety and panic attacks!
I think eventually in life he will be successful, it is just a tough road!
SamMom912
by Platinum Member on Oct. 4, 2012 at 10:12 PM
I also want to add what killed me is that since he is my first... And i dont have a mom or mil... I didnt have anyone to ask.. "is this normal behavior?" i second guessed myself for a really long time... 19 months that something was "up"... And then went thru evals and drs and therapies for him...
And for a really long time i fought with hubby and hubbys family and even my dad and his wife about how "normal" he seems cause well... Im the only one who spends 24 hours a day...
Hubby works 14 hours a day... Dad in in nc and sees sam 10 days a year, hubbys family sees sam on holidays... They all just thought he was a brat!
I was the one who KNEW when comparing him with other kids that he was "different"...
So now that i really do have family and hubby on my side after seeing the off behaviors for 6 years...my pediatrician questions me!?!?
Im not mad... Im just kinda fed up with the ignorance that everyone else can judge on 15 minutes...
Jennifair
by Jen on Oct. 4, 2012 at 10:25 PM

Sorry Scarlett. I'm happy you said something. That is totally not cool. Did Sam pick up on it? 

SamMom912
by Platinum Member on Oct. 4, 2012 at 10:26 PM
Quoting Jennifair:

Sorry Scarlett. I'm happy you said something. That is totally not cool. Did Sam pick up on it? 




He missed it.. Totally into high lites mag! Lol
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