well lets see where can i start. dd 2 had a neurology appt today we found out from the last mri that her brain is not devolped fully and it probably wont ever be. there are abnormalities on both sides of the back of her brain they arent sure what the cause is other than obvious loss of blood sometime during my pregnancy when i was 10-20 weeks with her. they think she could have possibly suffered a preterm stroke and she is at risk for seizures which luckily she has not had one yet *knocks on wood* she is 2 years old she isnt walking or crawling and from what the neurologist said she may never walk or she may need braces to help her walk. so she has to have physical therapy 3 times a week and speech occupational therapy and more pt (provided by a program that comes to your house by the state) once a week when we can hardly make it twice a month how do we do once a week wtf? then on top of all of that i have a uti yay me!!!! i hope these antibiotics kick in soon i ugh i cant stand the uti and i dont know how i should react to the news about dd i mean im not excited by it but should i be crying? what? i dont know. well thanks for reading
thanks oh and i forgot to add she has some chromosome abnormality or atleast the neuorlogist at ft bliss told us that and we have been at sill since this past summer and we still have not recieved my kids records from the neurologist at bliss the neurologist here has even requested the record from the one at bliss over 3 months ago and still have not recieved anything and no one at bliss wants to answer the phones im getting pissed and im about to get dh's coc involved in trying to get these medical records im pissed.
i just i dont know i was hopeing that maybe she would be like her sister and just be a late bloomer i never thought i would get told she might not ever walk. this changes everything dh and i were thinking of having another kid when he got back from this upcomming deployment but my dd is going to need me all the time so that plan is out the window.
I'm so sorry to read this about your daughter. My thoughts and prayers are with you and your family. I agree to do whatever necessary to get those records, those can be vital to your daughter's treatment.
well i am giving them till tomorrow then if i dont hear anything by monday i will be skipping coc and calling dh's cpt and saying look we need these records and our last base is giving me hell about it saying they dont have them blah blah blah blah im going to double check with our base here tomorrow to make sure they didnt arrive and no one told me just to be sure but if they dont have anything then yes i will be raising hell.
Good luck, and keep us updated. I really wish the best for your family. Know that you have tons of support.






'Jersey Shore' Recap: JWOWW's Dress Takes the Trashy Cake
- mommam58122
on Mar. 18, 2010 at 6:29 PM