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WELCOME!!!

Posted by on Dec. 1, 2009 at 11:28 AM
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Hi "Moms"!!  Welcome to my group.  My hope is that this will be a place for moms to come together who share questions, concerns and thoughts about living with PKD (and the future it may bring).  Let's face it, it may not be so pretty down the road.  Many people are living with this disease and will be lucky enough to not even know it or only experience milder symptoms of it with no strong advancement.

But, I also figure, there are others out there like me.  I am 36 and have a strong family history of the disease and am already living with advancing symptoms.  I'm no doctor, been to plenty of them though!!  So, now, after the last 2 months of bouncing between 3 specialists who can only seem to say "Well, we can only wait and see what happens next," I'd like to pick the brains of others out there like me - who actually live with PKD. 

I can't be the only mom out there with concerns, questions and the need to occasionally vent about how hard it is to get out of bed in the morning and make it through the day with the "kids" (what I've named my kidneys, a.k.a. Huey and Louey) acting up!  Go ahead - introduce yourself and jump in.  Spread the word about the group if you know anyone who could use a place to go.....

by on Dec. 1, 2009 at 11:28 AM
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Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)