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Amillianna's Story

Posted by on May. 4, 2012 at 10:58 AM
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Amillianna is 17 months old and has been a very healthy girl up until 2 months ago it all started with a fever and was told that it was due to her teething then on top of her fever we add ear infections, bouts of constipation, hemorrhoids, Bulleous Impetigo, Thrush and still running a fever between 100 to 104. For two months she was on antibiotics and tylenol and advil but nothing was helping take down the fever.

On Thursday April 26, 2012 Amillianna was not eating anything, moving around and her skin no longer had a pink color too it, it looked gray or yellow in color and she was very pale she looked like she was not going to make it too much longer or she had the look of death.

I took her in to the ER and had them run a blood test and her hemoglobin came back at 3.1 so they had to run it again to make sure it was not lab error and turns out it was not so they called for an ambulance and we were rushed to the University of Iowa Childrens Hospital.

Upon arrival more labs were done and at this point her hemoglobin was 2.9 with very low white blood cells, so we started the first of several blood transfusions after 6 transfusions her count was at 9.1 so it was high enough to proceed with a bone marrow biopsy which she had done and they had a prelimenary come back as she did have malignant cells in the bone marrow, so Wednesday she went down to have a central line port, tubes in both her ears, a spinal tap and the first dose of chemotherapy in her spine.

She did great, she did end up needing another blood transfusions following surgery as it was 7.7 but after the transfusion she was up to 10.1. We are on day 3 of chemo and she is up dancing and singing, talking and eating like crazy. She was diagnosed with Acure Lymphoblastic Leukemia with a low risk, so her chances of remission and survival are between 82 and 97 %, which are wonderful odds.

This is a 2 and a half year long treatment plan with a combo of the 5 meds she gets at home either 2 times a day up to 4 times a day, she comes in once a week for a IV chemo treatment and then at the end of 29 days she will receive another spinal treatment. 

With her treatment there are different phases and right now she is in the beginning of the induction face to put the cancer into remission.

We have our fingers crossed that if her fevers stay away, and she does okay with this on new med on Saturday she will be able to go home.

by on May. 4, 2012 at 10:58 AM
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Replies (1-10):
Bmama1
by on May. 4, 2012 at 11:19 AM
I'm so glad the chances of remission and survival are high! Stay strong momma. We are all here for you. Hugs.
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strictmomhere
by on May. 4, 2012 at 11:22 AM
God bless her
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nickysmom71
by Awesome Admin on May. 4, 2012 at 11:33 AM

((((((HUGS)))))))

nomadbrat83
by Platinum Angel on May. 4, 2012 at 12:06 PM


Quoting nickysmom71:

((((((HUGS)))))))

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quiltingmom77
by on May. 4, 2012 at 12:26 PM

Thank you for sharing this with us. We are with you and your family all the way hon! Hugs to all of you!

JAIRATRACI
by Verified member on May. 4, 2012 at 1:59 PM
Hugs.
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C8linVilla
by Golden Angel on May. 4, 2012 at 2:41 PM

So very sorry to hear this. I will be thinking and praying for her and all of you

sweetmommy811
by BFF Admin on May. 4, 2012 at 2:46 PM

 thanks for sharing your story! praying for your little dd.

Walker101
by on May. 4, 2012 at 3:27 PM

You are all surrounded with love! The odds sound very positive...thinking of you guys!!!

proudmamaofdd
by on May. 4, 2012 at 3:28 PM

Thank you for sharing!

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